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ako si BONG
ito ang aking diary
...and this is my HIV diary
Showing posts with label disease. Show all posts
Showing posts with label disease. Show all posts
Tuesday, October 14, 2014
Posted with Blogsy
Tuesday, September 30, 2014
I AM OFFICIALLY DISABLED ;)
"i got prostate cancer, and undergoing chemotheraphy"
that is my official statement
kapag may nagtanung why i have a PWD card
;)
yep i just got my PWD Card
Persons With Disability Card
thanks to #redX for the assistance
i am now officially disabled
.....
....
...
..
.
while i dont really feel like i am disabled
and for almost 3 years na alam ko na pwedeng
mag avail ng PWD Card
di talaga ako nag apply
but when my doctor gave me a form
and told me to just fill it up and they will take care of the rest
i just did
and after a week
viola!
i am now officially disabled
.....
....
...
..
.
20% discount on all meds
20% discount on lrt and mrt cards
discounts on all basic commodities
express lane sa mrt/lrt
express lane sa bangko
express lane sa lahat ng me pwedeng express lane
.....
....
...
..
.
not bad
not bad at all
im beginning to like my new status
i am now officially disabled
.....
....
...
..
.
ako si BONG
ito ang aking diary
PWD CARDS
(from #redX blog - http://advocatehiv.wordpress.com/2014/08/24/pwd-cards)
NATIONAL COUNCIL ON DISABILITY AFFAIRS (NCDA)
The National Council on Disability Affairs is located in Don Antonio Heights in Quezon City. It was actually accidental that I posted an HIV-blog in one of the facebook groups and a long time friend (who happens to hold a position at NCDA) messaged me to come and process a PWD card.
I was uncomfortable about the thought of processing one, but he was able to explain to me what I needed to know.
THINGS YOU NEED TO KNOW.
The card classification is PSYCHOSOCIAL. This is the same classification being used for Cancer and those who are undergoing (or have finished) drug rehabilitation.
You do not have to explain to any merchant what PSYCHOSOCIAL is.
HOW TO GET ONE FROM NCDA
For the time being, REDx is able to process the PWD cards, simply send the PWD form, your confirmatory and your I.D. picture.
The PWD form can be downloaded at PWD APPLICATION FORM
You can get your confirmatory results copy from your treatment hub, or as an alternate, you may ask your doctor for an abstract.
COMMON QUESTIONS
1. Who do we contact?
In Baguio, you can directly go to your hub and the staff have already been briefed of the protocol and they know where to send this.
In Cagayan De Oro, you may contact Northern Mindanao Advocates (NorMA) at mobile #0917-430-8597
In NCR & other areas, you can tweet @WIN_1221
In Cebu, you can tweet @HapIV_thoughts
2. What are the benefits of the card?
To mention a few:
>> 20% off restaurant bills
>> 20% off medicines (prescription under the name of the PWD cardholder and PWD booklet needed, supplements and multivitamins may not be covered)
>> 5% off basic commodities (SM Supermarket and the likes at a ceiling of P1,300/week, PWD PURCHASE BOOKLET may be required)
>> Express lane at retail establishments, MRT/LRT & Banks
You may view the full privilege or benefits at PWD PRIVILEGE
You may also tweet @GreyHuMin or @redscare31 for queries related to the card usage
3. How long is the processing of the card?
The actual processing should not be more than a couple of hours once the application & attachments are received. However, REDx brings the application forms on a per batch basis and as such, it may take time depending on the bulk of the application forms collated by REDx
4. What if I get declined from using my PWD Card?
You may email HASH.info@asia.com or tweet @HASH_info so we can report to NCDA
5. I had a previous bad experience in processing a PWD Card at my City hall, where can I report this?
You may email HASH.info@asia.com
SO YOU DON’T THINK YOU SHOULD HAVE A PWD CARD
This is not a requirement for the HIV Community. No one is being forced to apply or get the card.
LIMITED PROCESSING TIME ONLY
REDx can and will only process the cards until the end of 2016. Effective 2017, PWD cards will have to be processed at the local government unit level.
For more questions, kindly email HASH.info@asia.com
AUGUST 2014 REPORT CARD
everything is stable...
but need to watch my sugar and carbs...
otherwise...
i feel good...
i feel great...
kayo?
kamusta kayo?
ako si BONG
ito ang aking diary
Wednesday, February 12, 2014
SINGLE + SHINGLES = VALENTINES DAY!
yun na nga, singleblessedness ang peg ng kuya nyo!
eto ang bonus, shingles for valentines day!
kaloka ang timing at rhyming ng status ko ngayon.
buti na lang at first sign of the blister eh takbo na agad ako sa derma ko
so maaagapan ang gamutan - sana di na lumala pa ito
day 1 - three small blisters just above the knee
day 2 - additional bunch of itchy blisters on the inner thigh
at eto ang reseta, 2tabs x 3x daily x 7days = almost php 8000
potah mas lalo bababa cd4 ko sa gamot na ito
kaloka!
di bale i love myself naman!
(hugs self) - ouch sakit ng blisters!
ansayah sayah!
kayo? kamusta naman ang valentine nyo?
ito ang aking diary
ako si BONG
Sunday, December 29, 2013
TRAVEL RESTRICTIONS!
Pusit Public Service ---
hmmm... US - UK - AUS - TH --- andami ko pang pwede puntahan... Mag migrate kaya ako?
taralets!
ako si BONG
ito ang aking diary
Sunday, December 1, 2013
PLAYING SUNGKA ON WAD 2013!
december 1, 2013
today is WORLD AIDS DAY
today is also sunday
and what do i do first thing in the morning on a sunday?
I PLAY SUNGKA!
hanggang kelan kaya ito?
ako si BONG
ito ang aking diary
Saturday, September 7, 2013
GENITAL WARTS
through the years, there has been a lot of inquiries about Genital Warts among PLHIVs (even non PLHIVs) to the point na meron na akong top 3 clinics where i refer them everytime me nagtatanung sa akin. mukhang usong uso ang ganito sa mga immunocompromised na mga tao...
SABI NG WIKIPEDIA:
Genital warts (or condylomata acuminata, venereal warts, anal warts and anogenital warts) are symptoms of a highly contagious sexually transmitted disease caused by some types of human papillomavirus (HPV). It is spread through direct skin-to-skin contact, usually during oral, genital, or anal sex with an infected partner. Warts are the most easily recognized symptom of genital HPV infection. Although some types of HPV are known to cause cervical cancer and anal cancers, these are not the same types of HPV that cause genital warts.[1] Although 90% of those who contract HPV will not develop genital warts, those infected can still transmit the virus. Although estimates of incidence vary between studies, HPV is so common that nearly all sexually active people will get it at some point in their lives.[2]
HPV types 6 and 11 are most frequently the cause of genital warts. The Gardasil vaccine includes coverage for these types. While types 6 and 11 are considered low risk for progression to cancers, it is also possible to be infected with different varieties of HPV, such as a low-risk HPV that causes warts and a high-risk HPV, either at the same or different times.
end~
di ko na lang ipopost ang mga pictures kasi medyo gross...
dahil na rin sa kung anu anung mga horror stories na narinig ko before on sobrang mahal daw mag pa treat (cautery) meron pa daw minsan sumisingil ng P30k, some naman said 5k and above. what i did na lang is to research further and visit the best recommended clinic base sa mga PLHIV friends na napagtanungan ko.
dipende naman daw pala talaga kung anu ang extent ng kaso, ang sina suggest na lang ng mga duktor eh magpatingin kaagad sa first sign pa lang ng warts para maagapan. kasi kung masyado na daw malala, mas mahal syempre, kasi kung super konti palang minor lang daw at topical anaesthesia lang ang ginagamit.
back to the clinic. i found that the best recommended and affordable clinic that caters for Genital Warts is BARIA CLINIC (or Surgical Specialist) sa Cainta. consulation is about Php300 and Cautery procedure starts at Php 1500 only for early stage. here's how to reach them.
CAINTA JUNCTION
ALMOST AT THE JUNCTION MALAPIT SA ROBINSONS
MWF - 9am to 1130am
TThS - 2pm to 5pm
CALL MARYANN: 02.655.4701
ayan thats all that i found out. reminder that the earlier you seek medical attention, maaring mas mura ang cautery procedure. and since HPV ang cause ng genital warts, get vaccinated, whether positive ka na or negative ka pa sa HPV advisable pa rin na mag HPV vaccine para daw di pabalik balik ang warts or mas bumagal bumalik kasi ganun daw talaga yun. pinakamurang HPV vaccine na narinig ko for groups would be Php 2225 or as high as 5k per shot and we're supposed to get 3 shots in a span of 6 months.
yan muna.
stay safe always
ako si BONG
ito ang aking diary
Thursday, August 8, 2013
ITS TIME!
kasalukuyang nasa canteen ng RITM alabang, naghihintay ng 1 oras bago lamnan ang pangalawang sputum vial.
dahil sa resulta ng huling CD4 count ko kanina, nag request ang aking duktor ng karagdagang chest xray at sputum test.
mukhang kailangan na talagang magsimula at hindi na pwedeng ipagpaliban, dalawang taon din akong naghintay.
meron pa akong mga 2 linggo para gawin ang mga nararapat na lab tests at mga konsultasyon.
maliban duon eh wala naman ibang dapat ikabahala, wala naman akong nararammdaman.
pero bagong adustment na naman.
but i feel great.
i am ready.
329 = arv
;)
ito ang aking diary,
ako si BONG
(PS: sira ang aking mobile number, you can reach me sa email)
Thursday, May 30, 2013
THE ELUSIVE 500!
Stats update, i'm back at 498 from a low of 382 two months ago. so am back to "not wanting to get meds" ulit.
it was actually a steady improvement for 1 1/2 years until i got some bacterial infection last february that led to some neuropathic problems (unrelated to my serostatus). i was under medications which is expected to bring my immune system down. fortunately i recovered fast in just a matter of 3 weeks and my doctor said that it's a sign that despite my HIV status my immune system seems strong.
true enough my cd4 went down 382 last february and the doctor recommended that i start ARVs na. i hesitated and decided to wait another 3 months and see if my cd4 count would improve. nevertheless they started me on 6mo of daily doze isoniazid which is a phropylactic medications for TB.
and now the great news --- as of May my cd4 is up at 498 and i should say back on track.
improving without ARV medications.
something that i am very thankful of.
hindi nagpapatalo ang immune system ko, palaban pa rin.
i dont know how long they can hold this fight and i sincerely hope that they would not need medicinal reinforcements soon.
but then again there are a lot of study pointing to early medications as very beneficial to PLHIVs and that it will promise better protection for my sexual partner (bf). kaya mahirap pa rin magdecide i am torn between keeping a status quo and try to live a healthy life free of medications. or starting a new life on medications which can potentially impact my lifestyle.
for now am choosing the easier route of the status quo. i think my immune system deserves a chance to prove itself and fight this virus without reinforcements.
the elusive 500 cd4 count, i hope in another 3 months time i get to that mark or higher. it will surely make my resolve stronger that despite my serostatus, my body is winning the battle, for now.
ito ang aking diary
ako si BONG
Wednesday, May 15, 2013
HIV MEDS ADHERENCE???
Exactly what level of adherence to HIV medications is required to maintain virological control?
Dear Dr. Young:
This is a question that has always intrigued me, ever since I started on an effective antiretroviral treatment combination in 1997. Back then we were warned that even missing a single dose of our medications could spell disaster i.e. HIV resistance and subsequent loss of virological control. So I mustered all the self-discipline I could and took my medications as "correctly" as humanly possible and attained virological control (viral load measurements below the limit of quantification using whatever technology at the time) that I have maintained. Recently I undertook a very rigorous audit of my adherence that disclosed that in fact I take about 99 per cent of my doses and completely miss about one per cent in a one-year timeframe. Despite this error and lack of perfection my viral load remains undectable. I was just curious because even with the utmost of care that I bring to the task I still fall short of one hundred per cent perfection. Thank you for any insight you can provide.
Please accept my best regards,
Wayne Toronto, Canada
______________________
Response from Dr. Young
Hi Wayne and thanks for posting from Canada.
Perfection might be a goal, but rarely achieved.
You're adherence is exemplary- 99% is excellent and not associated with any decline in viral suppression. I would not be concerned about a 1% missed dose at all.
While we continue to quote a 95% goal (from a ~1999 study), with current medications, it's quite likely that lower levels of adherence continue to provide very good viral suppression.
In my clinic of less-than-perfect patients, loss of viral control has been exceptionally rare, and often the result of complete discontinuation of medications, rather than the inadvertent missed dose. So, worry not.
Be well, BY
Source: http://www.thebody.com/Forums/AIDS/Meds/Q229268.html?ic=700101
Monday, March 25, 2013
BATTLE WEARY
Battle Weary: A Poem by River Huston
Is it over yet?
crawling from a foxhole
made in the dirt
thirty years deep
the bodies are piled up
some old as cordwood
other freshly departed
Goodbye Ben
baby honey boy
you texted me
just last night
don't get it bro
but you're in God's hands now
You didn't get the memo?
it gets better, man
but I get it
you just worn out
worn down
How long can you live
with death firmly planted by your side?
it's that way for everyone
but for us it's visible loud
intrusive
bony hand on your shoulder reminding you
of everything you ever done wrong
I manage it
just some days the insides
turn to mud
and i can't get a grip
When the smoke cleared and the artillery
went from heavy mortars
to the occasional sniper fire
you'd think I'd handle it
cause i did the big fights
I survived sister
but it seems to have gotten worse though
when everyone was dying
somehow it was easier
it's that lone warrior
falling when you least expect it
it takes me down every time
This sadness is fierce
grief rolled up like punch
my ghosts
are loud
especially late at night
waking to conversations
long forgotten
My love, my love
how i miss you
Sunrise brings another day
some tea
put on the good face
the sea helps
if it doesn't make me cry
it gets me through another day
____________________________
i heard of a fellow pusit committing suicide a few weeks ago, even after a "self empowerment training" he has undergone --- sad!
ako si BONG
ito ang aking diary
Saturday, March 16, 2013
ANNIV NI DAN!
hi everyone
aun, kaya nga pla ako nagsulat ng story kc aniv ko na sa pagiging HIV + gusto maging memorable ang experience and ma share ito
kc until now marami pa akong d alam at gusto matutunan about HIV
nakakaloka dba pero wla na kong magagwa eto na ko....
ako nga pla si Dan 25 yrs old pero pag nakita nyo ko am look like 17, gaya ng sabi sakin dun sa HIV seminar namin baby face kasi ako eh, small built white complexion tska appealing ( uy am not making my self proud ah hahahahhaha description lang) going back i want to share my story kc gusto maging makabuluhan ang pagintindi ko sa sakit natin at matuto ng sobra.. takot eh... TAKOT AKONG MAMATAY
i was diagnose last 2012 April un the second un ang pinaka malungkot na pangyayari sa buhay ko, gusto ko lang mag patest nun sa HEPA B kc para un sa ojt ko sa hotel requirement eh, so i went to my auntie aun di ko alam she tested me for HIV aun sapul ako, i went to several test lahat positive, nakakalungot dba, ako nga di ko talga alam ang aggawin, i can't even tell it to anyone.
limipas ang mga buwan, days, and weeks, nag start ako mag pa baseline test awa ng diyos lahat negative until now ni hindi ako nag kaka sipon or ubo, even any sympthoms wla. healthy tlga siguro dhl wla pang manifestations, early detection eh
pasensya na pero magiging emotional na ako, gusto ko lang malabas lahat na alam kong un din ang nararamdaman ng marami sa atin...
lumipas ang araw at buwan naramdaman ko na ang sympthoms ng sakit ko i had lymph node sa leeg, sa armpit at sa shoulders siguro mga 10 sila lahat wla nmn akong nararamdaman kya deadma lang... i took anti boitics kc sabi nila mamwawala daw ang lymph pag ng anti bacterial mali pla ako
pang 7month ko na andyan parin sila nakatatak na sa leeg, balikat at dibdib ko, nakakatakot, nakakaalarma
pumunta ako sa treament hub ko sa alabang
pinagpala ako wla nmn findings kc sa totoo lang ni hindi ako nagkasakit or what even khit wla akong vaccine ( thank you lord )
pero di nagtagl nakakaranas na ko ng back pain upper part it almost last for now cguro mga 8 months na di nawawala di nmn ganun kasikt tolerable but mararamdaman mo
natatakot ako, ayoko nmn mag pa xray bka may lumabas at di ko nmn matanggap, kc honestly nung nalaman ko na meron ako gusto ko gumanti at i kalat ito, para patas patas tyo, kso naisip ko ako nga di ko matanggap hahayaan ko pa bang maranasan to ng iba?
di pa ako nag gagamot kc last CD4 ko 567 pa sya naun di ko na alam kung anu scheduled para para sa susunod na CD4
nagyoyosi at nagiimon pa ako
at malala kc di ko na maiwasan mag yosi at maginom
pasensya na pero simula ng malan ko to nalungkot parang ninakaw nya sakin lahat
ung kababtaan ko, ung kagustuhan kong i enjoy ang buhay ko, ang paginom at pakikibarkada
lahat un nawala na
pero alam nyo ba ginawa ko parin sya madalas pa din akong maginom at mag yosi
un na siguro ako
pero natatakot ako madami sa kaibigan ko ang namatay dhl din sa HIV
maswerte ako dhl wla pa akong OI anu ba gagawin ko? para matigil ang mga bisyo kong ito PLEASE HELP ME
naun gagraduate ako sa HRM ang saya ko nga eh, pero malungkot pa din kc wla pa din tyong gamot
nga pla marami akong kilala sa mga kaibigan ko parang positibo pero nahihya ako iapproach to take test anu ba gagagwin ko dun?
gusto ko sana matulungan nyo ko about sa situation ko kc nahihirap ung back shoulders ko may something tlga
atska natatakot tlga ako mamatay alam ko na alam nyo rin di lang ako bka kyo rin may mga kaibigan at mahal sa buhay na namatay dhil dito
natatakot din ako para sa sarili ko, na parang wla na akong karapatan maging bata at ma enjoy ang lahat, ung tipong iinom makikisalamuha ta makikipag yosi sa iba
wla na INAGAW NA NYA
ayoko mamatay, gusto ko mabuhay pero may bisyo ako anu ggwin ko?
naiiyak akokc parang wla na tyong silbi. uu meron tyo HIV pero anu it will eventually become AIDS, mamamatay, tapos paguusapan at pastsitsismisan
nasaksihan ko kc yan sa mga pumanaw kong mga kaibigan na kgayan ntn
alam nyo kapag naginuma kmi at HIV ang topic natatamemme ako, pero pag nagsalita na ko nakiknig sila,sana na aabsorb nila
ang irap noh, ung tipong paniwalain ang sarili mo na wla ka kahit meron ka!
lasing na ko, nagkalakas lang ng ako ng loob na ikwento to dhla natatakot ako sobra... SOBRA d ko na tlga alam ang ggwin
sana di katulad ang istirya ko ng istorya nyo
bsta KAPITBISIG TYO
sana may gamot na
sana paggalingin nila tyo
sana wla na lang ganito
Dan
Hello dan,
salamat sa iyong pagsulat, masaya ako dahil pinagkaabalahan mo ang pagsulat sa akin. hindi madali ang mag share ng ating mga nararamdaman.
lalong masaya ako at mukhang medyo mas upbeat ka na ngayon compared nung makilala kita sa training natin dati. newly diagnosed ka pa lang yata nun di ba at kamamatay lang din ng bestfriend mo? at sa buong batch ikaw nga ang pinaka bata at pinaka maganda! pero ikaw rin ang pinaka mukhang pinagsakluban ng mundo noong panahong yun. kaya sa tono ng sulat mo eh mukhang kinakaya mo naman, kaya masaya na rin ako.
ilang ulit mong sinasabi sa sulat mo na "ayaw mo pang mamatay" - ay maganda yan, ako rin ayaw ko pang mamatay, sinong bang me gusto nun. at sino bang nagsabi sa yo na mamamatay ka na, o mamatay na tayo? hindi ibig sabihin na positive tayo eh mamamatay na tayo. sa panahon ngayon sa tinagal tagal ng panahon na may HIV sa mundo, wala na dapat namamatay sa AIDS related complications. dahil epektibo naman ang mga gamot na available ngayon. kaya lang marami pa rin ang namamatay eh dahil too late na ng madiagnose sila. totally wala silang alam na positive sila, o mas pinili pa nila na wag malaman dahil naduwag sila, or alam nila pero ayaw magpagamot ng maaga, o mas pinili pang madepress, o natatakot sila sa sasabihin ng ibang tao at ituring silang outcast --- pagkaduwag, wala o maling kaalaman, stigma at diskriminasyon sa ating komunidad --- ito ang mga tunay na dahilan kung bakit marami pa rin namamatay sa AIDS. leche kasi ang mga moralista at self-righteous nating kababayan, nakakalungkot nga eh. kung me mga namatay ka ng friends, mas marami sa akin, i lost count na, mga 12 na yata sila. nakita mo ba akong naglulupasay at nawawalan ng pag asa? hinde! dahil the more i feel bad about my being pusit, the more am risking losing points on my cd4 ;) kaya dapat happy lang girl.
maswerte ka, maswerte tayo at maaga pa lang eh alam na natin ang ating status, ngayon pwede na nating alagaan ang ating sarili... sayang naman ang ganda mo kung magmumukmok ka lang dyan.
potah ka! ;) antaas taas nga ng cd4 count mo no. 567 ka pa... pinakamataas ko eh 499 lang. ngayon am down to 382 (feb 2013)... nirerecommend na nga ni doc na mag ARV na ako. sabi ko pagiisipan ko muna. sa next test ko sa august will be my big decision. sana tumaas ulit.
every 6months dapat ang baseline tests teh, baka due ka na for lab tests, go back to alabang na - bakla dont lose your FOCUS, ngayon kelangan mas maging masinsin tayo sa mga health issues natin. pay attention sa lahat ng sinasabi ng duktor.
maganda at ur always paying attention sa mga sakit sa katawan mo, everytime na may nararamdaman, visit your HIV doctor agad, ganyan din ako. madalas nga eh sinasabi ng duktor sa akin na dont worry dahil halos lahat ng ibang nararamdaman ko eh di naman related sa HIV status ko. normal na yatang maging paranoid tayo sa maliliit na bagay. pero dapat iwas stress, wag masyado magworry, basta check up lang lagi ang katapat and trust your doctors.
www.thebody.com --- yan ang bibliya ko sa lahat ng concerns ko, plus meron akong mga kaibigan duktor at nurses na lagi kong napapagtanungan pag kinakailangan. marami ring kaibigan ang nag aalaga sa akin at alam nila ang staus ko kaya kampante ako na di nila ako pababayaan.
sa ngayon am just concentrating on staying happy and living a productive life. living my life as if everyday is my last. masaya lang.
marami akong kilala na mga pusit na matataas ang posisyon sa kumpanya, maganda ang trabaho, malakas, maganda tulad mo. kaya girl wag ka magiinarte na wala ka ng kinabukasan at inagaw na ng HIV (kukurutin kita eh). you have your whole life ahead of you, maaaring mas mahirap ng konti ang landas na tatahakin natin subalit hindi ibig sabihin na sadyang mas kont ang oportunidad na ilalaan sa atin ng mundo. it's all about your attitude sabi nga nila, ikaw lang ang gumagawa ng iyong kinabukasan kaya tigilan na ang kaartehan at rumampa ka na at mabuhay sa matuwid na daan.
matuwid na daan means healthy life, which is what it should be naman, positive or not. minimize if not abolish your bisyo, kung di kaya ng bigla, unti unti. anything na makakapagpababa ng resistensya ng katawan natin, dapat iwasan. ituring mo na lang na mas babasagin ka kesa sa mga tropa mo. mas alagaan mo ang iyong sarili. pwede namang mag enjoy na hindi pinapabayaan ang ating health. sorry na lang tayo dahil pusit tayo, nagkamali tayo, nabawasan ang ating freedom kumbaga, alang alang sa ikahahaba ng ating buhay.
pwede pa rin i enjoy ang sex ng safe, hay naku teh, ang sarap din kaya. ;)
hihi.
madam, baka matagalan pa ang himala! wala pang gamot! how i wish meron na, pero ang kawalan nito ay hindi magiging hadlang para mabuhay ako ng masaya. papaano kung hindi ito dumating sa lifetime natin?
anung gagawin natin?
NGANGANGA*¥^<{}#<~~]{^???
happy anniversary dan, lets hang out soon...
ako si BONG
ito ang aking diary
My CD4 Count
Sunday, November 4, 2012
NEW RITM ALABANG (ARG) CD-4 TESTs SCHEDULE!
PUBLIC SERVICE!!!
MONDAY - TUESDAY - THURSDAY - FRIDAYS ONLY
except WEDNESDAYS
RESULTS ARE RELEASED AT 11 - 12NN DAILY
facilitates earlier release of results
for those who are due for consultation (same day)
ibig sabihin mas maaga na sila nagbubukas (7am)
this is GREAT NEWS!!!
its best that you get your schedule
beforehand kasi minsan kasi puno
na ang slots daw.
ako si BONG
ito ang aking diary
HELLO ARG!
its been 3 months
biglaan ang pagbisita
mag isa lang ako
wala si bf, nasa trabaho
---
lightheadedness
nilalamig
slight shortness of breath
me konting plema
----
am i sick?
or am i just getting paranoid?
---
mabuti na yung sigurado
so here i am
waiting for my turn
free consultation
---
familiar faces
new faces
---
wish me luck!
ako si BONG
ito ang aking diary
Saturday, August 18, 2012
SINO ANG NAKAHAWA SA IYO?
You know Bong, if you have noticed most of the HIV cases in PH, they hardly know where they got it. Very seldom that someone can recall or traced it back from its "ORIGIN".I know for a fact that it will not changed a thing if you have the virus already but then isnt it make you feel better if you know who passed it!
from HIVSLASHAIDS
http://hivslashaids.blogspot.com/
totoo, kahit ako, i cannot exactly pinpoint who is the culprit in my case... alam mo kung bakit? kasi mahirap naman talagang malaman kung sino --- unless isa lang ang nakasex (unsafe) mo sa buong buhay mo, or kapag once every 6 months ka lang nakikipagsex at within that period eh magpapaHIV test ka, siguro kapag ganun ang case mo mapipinpoint mo...
it is a FACT na even if you have unsafe sex sa isang PLHIV, may chance pa rin na hindi ka mahahawahan --- hindi automatic na mahahawahan ka agad, may chances pa rin na hindi... maraming factors ang dapat iconsider. ang sabi pa nga ng ibang studies eh mahirap naman daw talaga na maikalat ang HIV, marami lang talagang mga tao ang nagiging mapangahas pagdating sa sex.
so ano yun iisa isahin mo ang mga nakasex mo? pipilitin mo magpatest kung ayaw umamin or kung hindi nila alam? (thats against the law to make-pilit magpatest anybody) tapos kung nag positive nga sila, pano mo mapapatunayan na sya ang nakahawa sa iyo at hindi ikaw ang nakahawa sa kanya? so you have to consider time differences, kelan ka nahawahan? kelan ka nagpatest? kelan sila nahawaan? kelan sila nagpatest? --- eh kung magnegative yung pinagdududahan mo, e di ikaw naman ang babalikan nya, bakit mo siya inilagay sa risk of infection, ikaw naman hahabulin. walang katapusan na counterchecking baka makagawa ka na ng family tree ng HIV sa Pilipinas. gugulo lang ang buhay mo.
negative energies ang mga yun, wala na akong panahon sa ganun, i just wanna live a healthy and positive life, anything i do that does not make me productive and will not lengthen my life is a WASTE of TIME - so why bother? ;)
para sa akin, ang katotohanan, kasalanan ko rin ito, nagpabaya ako, tinatanggap ko ng 100% ang responsibilidad na ito, wala akong sinisisi at itinuturo...
sana lahat tayo ganun.
ito ang aking diary
ako si BONG
Tuesday, August 14, 2012
SI AMBER
Im Amber,Lagi kong binabasa ang story dito.Dito ako nagkaroon ng lakas ng loob para magpatest,Isang taon nakong gustong gusto magpa-test pero sobrang takot ako at nahihiya at hindi ako handa na tanggapin kung Positive man ako..
My 2years live in Partner turns out na marami pala syang kinakasiping nalaman ko lang nung pahuli na namay isa pala syang YAHOO at dun sya nakikipagchat sa mga babaeng nakakasiping nia pinag-uusapan pa nila how they did it,
Nakapaghiwalay ako agad, 1.5 years na ang nakakalipas since huli kaming nagsiping and he never used condom.Palagi akong nag-aalala na baka may HIV ako..Sobrang paranoid ko na.. Finally yesterday nagkaroon din ako ng lakas ng loob makapag pa test sa MAKATI SOCIAL HYGIENE and it turns out "REACTIVE" Sa mga pagkakataong yun hindi ako makapaniwala na sinasabi ng Nurse sakin na "REACTIVE daw" Hindi ako makatayo nanginginig ang mga tuhod ko..Sabi nia hintayin ko daw yung Confirmatory test after 2-3 weeks.
Kapag "REACTIVE ba means malaki ang chance na Positive ???I dont feel sick wala akong symptoms na nararamdaman walang rash or lymph nodes,,wala ring LBM akong nararanasan hindi ko matanggap na REACTIVE yung results pinapaniwala ko pa rin sarili na magiging Negative yung Confirmatory.Gulong gulo ako hindi ko alam ang gagawin ko.Di ko alam kung sino ang kakausapin ko.
Salamat at Pasensya kana ang haba na ng message ko
Amber
Hello Amber,
Masaya ako at malungkot.
Masaya dahil kahit papaano, ang aking blog ang naging daan para magkaroon ka ng lakas ng loob para tanggapin sa iyong sarili na maaaring nagkaroon ka ng RISK sa HIV, at lakas ng loob to take the first step and had yourself tested. Sana sa proseso ay mas naliwanagan ka na kung ano ang katotohanan ng HIV at AIDS.
Malungkot dahil hindi naging maganda ang resulta ng screening test mo sa Makati. Totoo na mahirap ang sitwasyon mo ngayon lalo na at naghihintay ka ng CONFIRMATORY TEST mo, marami sa mga kakilala ko ang ganun din at gulong gulo ang isip during that time. Para sagutin ang iyong tanung, because our screening tests now have greatly improved through the years there is only a very slim chance that you can turn out NEGATIVE on your confirmatory tests. There is but its really very very rare - that I would not want you to bank on it and get disappointed again after a few weeks. (some might not agree with me, let me tell you why this is my view)
Naalala ko pa nung nakuha ko na ang result ng confirmatory test ko -----
JULY 2, 2011 “ REVELATIONS --- habang pasakay na kami ng kotse wala na kong ibang nasabi kungdi “sinabi ko na sa inyo guys eh” . pagkaupo, hinagilap nila ang aking kamay at mariing pinisil. nagsimulang tahimik ang aming biyahe pabalik sa coffee shop na pinag almusalan naming. maya maya ay nagsimula na naman ang diskusyon ukol na potensyal na magnegative pa ang confirmatory test na gagawin. may suhestiyon si jimboy na kumuha ng panibagong rapid HIV testing sa isang pribadong clinic na malapit sa lugar naming “just to reconfirm the initial findings” sabi nya. hindi na ako pumayag. ang sa akin lang, kahapon ko pa natanggap na malaki ang potensyal na maging positive ako, mahirap mang isipin, hindi pa ako umiiyak at wala akong nararamdamang kailangan kong umiyak dahil sa mga pangyayaring ito. gusto ko lang magsimula na agad na harapin ang kalagayan ko, ayoko ng bigyan pa ng false-hope ang aking sarili sa isang bagay na alam ko naman na maliit na lang ang potensyal na mangyari. kung kailangan tanggapin na ngayon, tanggapin na lang. oo maghihintay pa ako ng 2 linggo pero ang alam ko sa ngayon POSITIVE ako. yun ang totoo, anu ang gagawin ko mula sa araw na ito. naintindihan nina jamil ay jimboy ang punto ko at tinaggap na rin nila ang aking argumento. ---
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Amber, I sincerely hope that your case can be part of that rare cases where the confirmatory tests will reveal negative results. Pero sa ngayon mas magiging mas advantageous para sa iyo na tanggapin na lang kaagad ang resulta at magsimula sa panibagong buhay na kailangan mong harapin (tulad ng ginawa ko) ng sa gayun ay mabawasan na ng pag aalala at lalong depresyon sa buhayh mo ngayon. Kung sakaling maging maswerte ka sa confirmatory result mo, then we can celebrate and treat it as a bonus. Kung hindi naman at talagang POSITIVE ka na eh maaga pa lang ay nakapag move on ka na and you start taking care of yourself (at hindi na nasayang ang 2 buwan sa pagaalala at mga negative thoughts). Dapat mong tandaan na sa iyong kalagayan ngayon, the last thing you need to to feel depress and feel bad. Andyan na yan at di na natin mababago ang nakaraan. The more you spend time getting depressed and “feel negative” about the situation, it will further take its toll on your immune system and your health.
Napakadaling sabihin pero sobrang hirap gawin, may ilang tao akong kilala na it took months and sometimes even years before they were able to move on with their life and start feeling good about themselves again. Ako it took me 1 day of sadness and feeling ”lost” after which nakamove on na ako agad. Alam mo kung bakit??? Dahil sa simula pa lang ay educated na ako about HIV and AIDS, malawak na ang kaalamam ko sa isyung ito, PLUS sadyang masayahin at “positive thinker” lang talaga akong tao, I always look at the positive side of things, marami na akong napagdaanang bagay sa buhay ko and nothing can pull me down, not even HIV. Hiling ko ay sana ay maging madali para sa iyo na maka move on.
Base sa mga bagong diagnosed na nakasalamuha ko, kahit pala dumaan naman sila na proper POST TEST COUNSELNG, pero dahil nga sa biglang masamang balita ay tila wala silang naintindihan at maalala sa mga sinabi ng COUNSELR after nilang malaman ang resulta. Normal ito na nasa state of shock tayo at kahit nai explain na sa atin ang mga dapat gawin, ay tila confused na confused pa rin tayo. Dahil siguro hindi natin nasabi or naisip agad ang mga sitwaysyon na kinalalagyan natin at hindi ito direktang nasagot ng counselor. (paano ako? Paano ang anak ko? Paano ang trabaho ko? Paano wala akong pera? At marami pang iba) .
Kaya inirerekumenda ko na
1. after a few days at mas malinaw na ang iyong pagiisip, ay makipagusap ulit sa iyong counselor, o kaya sa isang counselor na PLHIV (people living with HIV) din kung saan mas mailalatag mo ang iyong mga katanungan at kalituhan para masagot isa isa. Hanggat hindi mo ito nagagawa ay hindi mawawala ang iyong pag ka “lost” sa sitwasyon mo.
2. kung ayaw mong makipag usap, pwede ka ring magresearch – may kumpletong impormasyon tungkol sa NEWLY DIAGNOSED sa www.thebody.com, halos lahat ng tanung natin nasagot na nila you can go directly here --- http://www.thebody.com/content/49985/just-diagnosed-with-hiv-aids.html?ic=3001 --- maari lang may ibang detalye na hindi angkop sa sitwasyon natin sa pilipinas kaya para sa akin mas mahalaga pa rin na makipag usap o magtanung ng personal na isang tao na nakakaalam tungkol dito, a PLHIV na Counselor or just plain PLHIV.
3. Research and educate yourself completely on HIV & AIDS (same website).
4. Start living a Healthy Life. (which is the way it should be PLHIV or not)
5. Consider having a PLHIV Support Group (BABAE PLUS, PINOY PLUS, CEBU PLUS, PAFPI etc..) kasi sila ang magiging katuwang mo sa lahat ng iyong katanungan. Sobrang dami ring anonymous PLHIV Twitter users, if you want to belong but still keep your identity anonymous and share your story - there is a lot to learn from our PLHIV colleagues and to know that there are hundreds and thousands of us out there is PRICELESS. I can introduce you to them, tweet me at --- ako_si_BONG
6. Consider disclosure to key people. importante ito pero hindi naman requirement.
7. Have you Philhealth documents ready. malaki ang maitutulong nito sa ating bagong buhay. kung wala ka pa, make sure you enroll immediately.
8. Seek medical attention and follow the crucial next steps after you receive your Confirmatory Results. – CHOOSING & REFERRAL TO TREATMENT HUB – BASELINE LABORATORY TESTS – QUARTERLY OR BI-ANNUAL CHECK UP WITH AN HIV DOCTOR.
9. Most importantly Love Yourself above all.
EMBRACE POSITIVITY:
a. You took the test and now you know your status, you can finally stop wondering and start to move on --- this is good!
b. Mukhang just a few years lang yung risky sex relationship mo, means a few years lang din nung ma acquire mo ito… meaning there is still a plenty of time to move and seek proper medical attention…. Some people took 5 to 10 years to find out their status, and sometimes its already too late for them.
c. You are perfecty healthy at wala kang anumang sakit. Meaning wala pang kahit anung opportunistic infections. This is great, more good news. --- dipende sa tao at sa kanilang immune system, a person can last 2 to 10 years without any signs and symptoms before they realize that they are infected --- PLUS chances of living a productive life dramatically increases with proper ARV treamments which is now available for you (30 to 40 years is no longer rare for PLHIV). This is GREAT.
d. Di ito cancer, walang taning ang buhay natin. Masuwerte pa rin tayo.
Focus lang ang kailangan, presence of mind at ilang taong iyong masasandalan. Step by step. You can surpass all these.
AMBER, i give you a “Virtual HUG” – know that its not the end of the world and we will be here for you, all you have to do is ask.
ito ang aking diary
ako si BONG
email: playingpositive@gmail.com
twitter: ako_si_BONG
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