I AM OFFICIALLY DISABLED ;)

 

 

"i got prostate cancer, and undergoing chemotheraphy"

that is my official statement

kapag may nagtanung why i have a PWD card

;)

yep i just got my PWD Card

Persons With Disability Card

thanks to #redX for the assistance

i am now officially disabled

.....

....

...

..

.

while i dont really feel like i am disabled

and for almost 3 years na alam ko na pwedeng

mag avail ng PWD Card

di talaga ako nag apply

but when my doctor gave me a form

and told me to just fill it up and they will take care of the rest

i just did

and after a week

viola!

i am now officially disabled

.....

....

...

..

.

20% discount on all meds

20% discount on lrt and mrt cards

discounts on all basic commodities

express lane sa mrt/lrt

express lane sa bangko

express lane sa lahat ng me pwedeng express lane

.....

....

...

..

.

not bad

not bad at all

im beginning to like my new status

i am now officially disabled

.....

....

...

..

.

ako si BONG

ito ang aking diary

 

 

 

PWD CARDS

(from #redX blog - http://advocatehiv.wordpress.com/2014/08/24/pwd-cards)

 

NATIONAL COUNCIL ON DISABILITY AFFAIRS (NCDA)

The National Council on Disability Affairs is located in Don Antonio Heights in Quezon City. It was actually accidental that I posted an HIV-blog in one of the facebook groups and a long time friend (who happens to hold a position at NCDA) messaged me to come and process a PWD card.

I was uncomfortable about the thought of processing one, but he was able to explain to me what I needed to know.

THINGS YOU NEED TO KNOW.

The card classification is PSYCHOSOCIAL. This is the same classification being used for Cancer and those who are undergoing (or have finished) drug rehabilitation.

You do not have to explain to any merchant what PSYCHOSOCIAL is.

HOW TO GET ONE FROM NCDA

For the time being, REDx is able to process the PWD cards, simply send the PWD form, your confirmatory and your I.D. picture.

The PWD form can be downloaded at PWD APPLICATION FORM

You can get your confirmatory results copy from your treatment hub, or as an alternate, you may ask your doctor for an abstract.

COMMON QUESTIONS

1. Who do we contact?

In Baguio, you can directly go to your hub and the staff have already been briefed of the protocol and they know where to send this.

In Cagayan De Oro, you may contact Northern Mindanao Advocates (NorMA) at mobile #0917-430-8597

In NCR & other areas, you can tweet @WIN_1221

In Cebu, you can tweet @HapIV_thoughts

2. What are the benefits of the card?

To mention a few:

>> 20% off restaurant bills

>> 20% off medicines (prescription under the name of the PWD cardholder and PWD booklet needed, supplements and multivitamins may not be covered)

>> 5% off basic commodities (SM Supermarket and the likes at a ceiling of P1,300/week, PWD PURCHASE BOOKLET may be required)

>> Express lane at retail establishments, MRT/LRT & Banks

You may view the full privilege or benefits at PWD PRIVILEGE

You may also tweet @GreyHuMin or @redscare31 for queries related to the card usage

3. How long is the processing of the card?

The actual processing should not be more than a couple of hours once the application & attachments are received. However, REDx brings the application forms on a per batch basis and as such, it may take time depending on the bulk of the application forms collated by REDx

4. What if I get declined from using my PWD Card?

You may email HASH.info@asia.com or tweet @HASH_info so we can report to NCDA

5. I had a previous bad experience in processing a PWD Card at my City hall, where can I report this?

You may email HASH.info@asia.com

SO YOU DON’T THINK YOU SHOULD HAVE A PWD CARD

This is not a requirement for the HIV Community. No one is being forced to apply or get the card.

LIMITED PROCESSING TIME ONLY

REDx can and will only process the cards until the end of 2016. Effective 2017, PWD cards will have to be processed at the local government unit level.

For more questions, kindly email HASH.info@asia.com

 

 

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SURVIVED DAY 1!

OA naman, parang big big deal. parang nagkasakit... hindi naman. i just survived Day 1 of m ARV medications. am now on day 2. So far so good, its not as bad as i expected.

(SHIP - my new clinic in shaw blvd)

TRANSFERED HUBS

i am now with SAGIP Unit (STI/AIDS Guidance Intervention & Prevention Unit) under UP-PGH. lumipat ako from RITM-ARG at mabilis lang naman ang proseso, napaka accommodating pa rin ng mga taga RITM Alabang and i soooo love them still. pero there are some important considerations why i have to transfer. kaya ayun, wednesday morning i was at RITM Alabang then kinahapunan, dala ko na ang endorsement at medical abstract ko sa clinic sa shaw.

bakit kamo? kasi nga am about to start ARV na. eversince naman eh naisip ko na that when the time comes na kelangan ko ng mag gamot and my CD4 count gets to lower than 350, i would like to have a private doctor, someone who can give my case more attention. syempre lahat naman tayo gusto yung naaalagaan tayo. hassle din kasi minsan ung dami nakapila for consulatation then all you get is a few minutes with the attending doctor. minsan lang feeling ko baka may di mapansin sa case ko at baka may mamiss-out.

and so i found a great doctor, (si Dra. Kate) dahil super duper highly recommended sya ng ilang friends ko. at dahil under sya sa UP-PGH kaya i needed to transfer hubs. ang good news pa eh she holds clinic sa shaw blvd lang, lapit lang sa akin, all labs and dispensing of medications can be done there so super convenient para rin sa akin. syempre dahil sa philhealth libre pa rin lahat ng gamot and labs, mabuti na lang at continuous ang contributions ko. having a private doctor means me consultation fee (not free) and for me its totally fine, so long as ensured ako na naaalagaan ang case ko. Php 550 per consultation, i'd say not bad kasi halos ganun din naman nagagastos ko everytime bumibiyahe ako sa Alabang.

i am going to miss alabang.

DAY 1

after waiting for a few weeks para sa results ng sputum at xray ko, i was finally cleared and ready to start ARVs. all my labs wer great except that medyo mataas daw cholesterol ko - DIET DIET DIET sabi ni dra.!!! kaloka i soooo love her, sya yung duktor na super kwela at masaya kausap, walang ni isa mang hint ng judgement sa pagkatao mo kaya nga because of that i feel soooooo safe to tell her everything even my occassional recreational drug use. tapos super sipag pang sumagot sa mga emal at text, feel ko na she really wants to help out and take care of you.

so i brought my BF during my ARV counseling para maging treatment partner ko. naexplain naman ni doc ang mga gamot ko and possible side effects. sabi nya of all yung EFAV lang talaga ang medyo nakakagroggy kaya sa gabi sya tinatake before sleeping.

(efavirenz -adverse effects)

 

and so yesterday was day 1, TENOFOVIR - LAMIVUDINE - EFAVIRENZ, considered 2nd-line ARV na yata yun because dra thinks its best for my case. i stayed at home the whole day to see what happens.

morning medications did not have any noticeable effect whatsoever. yung efav sa gabi ang medyo nahilo at nagroggy nga ako. parang slight naka ecstasy ka lang pero since nakahiga na rin ako agad 30mins after taking it di ko na siguro naramdaman yung ibang effects. i just noticed mga 3x ako nagising middle of the night at parang medyo restless, pagkagising ko kaninang umaga hilo pa rin ako for about 1hr tapos unti unti rin nawala. itinodo ko na rin yung aircon kagabi kasi sabi nila it can feel hot sometimes. dahil dun di ko naman nafeel kung uminit nga ako.

so ayun success ang day 1 ko ko, i hope tuloy tuloy lang and that after 1 month my labs will show good numbers pa rin. wish me luck.

 

VACCINES

have to save money pala for more vaccines to protect myself from other possible diseases. magastos din but have to do it. IPON IPON IPON!

 

so ayan, alam nyo na na buhay pa rin ako, alive and kicking all over. happy lang. tamad lang talaga ako magblog lately. sensya naman.

o kamusta naman kayo?

 

ako si BONG

ito ang aking diary

 

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IT's CHATIME!

Today is the start of the rest of my life!

ako si BONG

ito ang aking diary

 

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Life Expectancy for PLHIV

Many patients taking HIV drugs can now expect to live into their 70s

Michael Carter

Published: 25 July 2008

A large international study has provided evidence that people taking HIV treatment can now expect to live into their 60s and beyond. The study is published in the July 26th edition of The Lancet, and showed that an individual starting successful HIV treatment aged 20 would be expected to live to be 63, and that a patient initiating an anti-HIV drugs regimen aged 35 could live to the age of 67. It also provided evidence of the dramatic and continued decline in the risk of death amongst people with HIV since effective HIV treatment became available.

What is more, the researchers found that starting treatment with a CD4 cell count above 200 cells/mm3 would mean that a person aged 20 could expect to live to be 70, and that a 35 year-old could survive into their 72nd year.

Nevertheless, they still found that even in their most optimistic estimates, the life-expectancy of HIV-positive individuals was approximately ten years shorter than that of an HIV-negative individual. Furthermore injecting drug users and patients who started HIV treatment with lower CD4 cell counts had lower life-expectancies.

The author of an accompanying editorial calls these findings “exciting” and believes that they underline the importance of prompt diagnosis and treatment of HIV. He also suggests that the risk of death would be diminished and overall prognosis further improved by starting anti-HIV drugs with a CD4 cell count of 500 cells/mm3.

Almost immediately after multi-drug antiretroviral therapy became available in 1996, doctors observed dramatic reductions in rates of illness and death in HIV-positive patients treated with such drugs. A number of studies have shown that antiretroviral therapy has the potential to dramatically improve the prognosis of HIV-positive patients, but they have only considered patients in single cohorts or countries.

Therefore researchers from the Antiretroviral Cohort Collaboration which involves 14 large HIV cohort studies in Canada, Europe and the USA, looked at rates of mortality and the life-expectancy of over 43,000 patients who started HIV treatment for the first time between 1996 – 99, 2000 – 02 and 2002 – 05. They also looked at whether there were any patient characteristics which affected the risk of death or prognosis.

A total of 2056 (5%) patients died. The mortality rate fell from 16 deaths per 1000 person years between 1996- 99 to 10 per 1000 person years between 2002 – 05.

They also noted significant improvements in the prognosis for HIV-positive patients in the ten years of the study. Overall, a 20 year-old starting HIV treatment between 1996 and 2005 would be expected to live another 43 years. Between 1996 and 1999, they calculated that such a patient would live to be 56 years old, but in the period 2002 to 2005 this had improved to a little under 70 years.

There were also impressive improvements in the prognosis of 35 year-olds starting treatment, with an expectation of a further 32 years in life after HIV therapy was initiated. But, once more, prognosis improved over time from an expectation of a further 25 years of life in 1996 – 99, to 32 years by 2002- 05.

Patients who started HIV treatment with a low CD4 cell count (below 100 cells/mm3) had much higher mortality rates than patients initiating antiretroviral therapy with a CD4 cell count above 200 cells/mm3 (aged 20 – 44, 20 per 1000 person years vs. five per 1000 person years).

Furthermore a 20 year-old starting treatment with a CD4 cell count below 100 cells/mm3 would have a life-expectancy of 54 years compared to a life-expectancy of 70 years for a 20 year-old starting treatment with a CD4 cell count above 200 cells/mm3. The importance of CD4 cell count at the time of therapy initiation to prognosis was also seen in 35 year-olds, with patients with a CD4 cell count below 100 cells/mm3 expected to live until they were 62 compared to a prognosis of 72 years for patients with a CD4 cell count above 200 cells/mm3.

The investigators also found that women had a better prognosis than men, but that injecting drug users had a life-expectancy that was up to 20 years shorter than non-injecting drug users.

“There has been an improvement of outcomes with combination antiretroviral therapy between 1996 and 2005, characterised by a marked decrease in mortality rates” write the investigators. They attribute such reductions in mortality and improvements in life-expectancy to “improvements in therapy during the first decade of combination therapy.”

But they note that their study suggests that the prognosis of people taking antiretroviral therapy is still not normal. Picking up on this point, the author of the accompanying editorial highlights the findings of the SMART study which showed that patients with lower CD4 cell counts had a higher risk of serious non-HIV-related illnesses. The SMART study’s conclusions were one of the factors leading to HIV treatment guidelines recommending that antiretroviral therapy should be started at a CD4 cell count of 350 cells/mm3. The author notes the “clinical mischief of untreated HIV infection” and looks forward to the results of a clinical trial which could show if there is any benefit in starting HIV treatment at a CD4 cell count of 500 cells/mm3.

Reference

The Antiretroviral Cohort Collaboration. Life expectancy of individuals on combination therapy in high-income countries: a collaborative analysis of 14 cohort studies. The Lancet 372: 293 – 299, 2008.

Cooper DA. Life and death in the cART era. The Lancet 372: 266 – 267, 2008.

 

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ANG AKING CD4 CHART!

Click Chart for LARGER VIEW

kakabalik ko lang from RITM ALABANG, while i was totally scared that my CD4 have dropped, i was totally amazed that in fact it has increased to  499.  no meds. no nothing,

after hearing about it, a PLHIV friend texted:

L: Wow congrats, ano secreto mo?
Bong:  Lot's of safe sex! hahaha!
L: hahaha. adik!
Bong: seriously, i live my life like i don't have it.
L: haha, nice.

___

let me explain that further... syempre hindi naman totally like normal life... of course as much as possible i eat healthy na rin and watch what i eat. kung di man makatulog on time, i make sure i sleep 8 hours a day.  minsan stressful pa rin ang trabaho ko, madalas pala... but what i can proudly say that i've been very 'positive' sa pananaw ko sa buhay that sometimes pati ako nagugulat (eversince naman ganun na ako, mas lalo pa ngayon), like nung HABAGAT, bumabaha na lahat, i still felt okay, habang nagkakagulo at nadedepress at nagpapanick na ang lahat. i was so calm and relaxed, naglulutangan na ang mga gamit ko sa tubig, i was sooo cool about it, nasa isip ko lang nun i have to stay "positive and cheerful" and so i did.  minsan nagugulat talaga ako sa sarili ko, immune na yata ako sa negative energy.

minsan lang talaga nagwoworry din ako (konti lang) lalo na kapag nagkakasakit ako --- like 1 month ago nagkatrangkaso ako, high fever at sakit ng katawan, 1 week ako house arrest, gumaling ako sa co-amoxiclab --- tapos this week konting ubo at sipon, under antibiotics ulit ako.... eh hindi naman ako sanay sa ganito na nagkakasakit kasi for 30 more years hindi naman ako nagkakalagnat nor sipon talaga, kaya syempre nagwoworry din ako ng konti - baka bumababa na cd4 count ko.  nung nagpatest nga ako nung isang araw eh ready na ako sa sarili ko na magsimula ng gamot (ARV) kung talagang bababa ang count ko -

pero ayun nga tumataas pa --- swerte lang siguro ako --- sabi ni doc baka member ako ng mga taong hindi talaga masyado naaapektuhan ng HIV (magdilang anghel ka sana doc) kasi considering na walang meds, eh tumataas pa rin ang CD4 ko at perfect pa rin lahat ng mga baseline laboratory results ko.  sabi rin ni doc, ang mga trangkaso at sipon ay normal lang na occurance kahit sa mga healthy na tao lalo na sa panahon ngayon na tag ulan -so i dont have to worry about it. ang importante daw at kumonsulta agad sa duktor everytime may karamdaman para magamot kaagad.

kaya ngayon happy ako, im on the right track, sana eh tuloy tuloy na.

btw. everytime i visit RITM Alabang, maraming revelations, syempre di maiiwasan makasalamuha ang mga pasyente dun, lagi ako may nakikitang malapit na kaibigan, so ayun nakakaron na ng disclosure na di inaasahan.  para sa akin okay lang masaya nga...

"ay ikaw din!!!"

tapos ayun chikahan na

ansaya


ito ang aking diary
ako si BONG


..... and yes, i do have lots of safe SEX (hahaha), i dont want to go into details pero masaya ako, super saya, medyo salat sa salapi pero dinadagsa ng pagmamahal!

INFO ON TREATMENT CARE & SUPPORT!

yan nag-positve ka na --- pano ka na ngayon???

MUST READ!
I SAW THIS FROM JAKE  (http://www.jakepositive.blogspot.com)
SOME VERY HELPFUL INFO FOR PLHIVs

HIV and AIDS Treatment Care and Support in The Philippines

                               

Upon diagnosis of a person as HIV + he/she needs to prioritize and secure these important things to ensure that he/she is able to access proper treatment and support.

1. Secure copy of your Confirmatory/Western Blot Test and present it to a Doctor preferably an Infectious Disease Doctor. He is the right Doctor that could help you and plan out your treatment. If you don't know any then ask for someone in a healthcare facility that you trust that could direct you to one.

2. Secure and Pay your PhilHealth membership. A Person Living with HIV here in the Philippines is entitled access of the OHAT (Outpatient HIV and AIDS Treatment) Package given by PhilHealth all you need to do is to pay your PhilHealth membership fees on time.

     In support of the United Nation's Millennium Development Goal Number 6 to halt or
     reverse the incidence of Human Immunodeficiency Virus (HIV)/Acquired Immune
     Deficiency Virus (AIDS) by 2015, PhilHealth through Board Resolution No. 1331, series of
     2009 has approved die implementation of an outpatient HIV/AIDS treatment package. This
     benefit aims to increase the proportion of the population having access to effective
     HIV/AIDS treatment and patient education measures.

      A. General Rules

          1.The Outpatient HIV/AIDS Treatment (OHAT) Package will be paid through a case
          payment scheme. Annual reimbursement is set at 30,000 pesos per year.

          2.Only confirmed HIV/AIDS cases requiring treatment shall be covered by the package.

          3.Package shall be based on Department of Health (DOH) guidelines on anti-retro viral therapy
          among adults and adolescents with human immunodeficiency virus infection. All
          treatment hubs in accredited facilities are required to follow the guidelines set by the DOH.

     B. Specific Rules

          1.Covered items under this benefit are drugs and medicines, laboratory examinations including Cluster
          Difference 4 (CD4) level determination test and test for monitoring of anti-retro viral drugs (ARA7)
          toxicity and professional fees of providers

          2.The package will be released in four (4) quarterly payments; each sub-package is worth 7,500
          pesos payable to the recognized treatment hub of accredited facilities. A maximum of four (4)
          treatment sub-packages per year may be claimed by the treatment hub.

          3.Each quarterly claim is covered by the rule on single period of confinement computed from die date
          of consultation. Any additional claims filed within this same period for the same reason will be denied.

          4.Only die actual quarters wherein services were provided in a year will be reimbursed.

         5.Each quarterly claim shall be charged one (1) day against the 45-day annual limit or a sum of 4 days
         per year.
         6.In cases of transfer from one treatment hub to another, PhilHealth will still reimburse provided:

               a.The facility that the patient was transferred to is also PhilHealth accredited.

               b.A referral letter from the referring facility to the receiving facility is accomplished.

               c. The Corporation will reimburse the facility prior to the transfer .



3. Baseline tests such as CD4, Viral Load, Blood Chemistry and other tests requested by the doctor are the most crucial tests of all because this will be recorded and will be a basis to your future tests result in order to know the disease progression.

          CD4 (Cluster Difference 4)

          Usually, the CD4 test is used to determine when a person should start treatment.
       
          HIV attacks a type of immune system cell called the T-helper cell. The T-helper cell plays an essential
          part in the immune system by helping to co-ordinate all the other cells to fight illnesses. HIV damages
          and destroys T-helper cells; as a result, there are fewer cells available to help the immune system. A
          major reduction in the number of T-helper cells can have a serious effect on the immune system.

         A CD4 test measures the number of T-helper cells (in a cubic millimetre of blood) which is known as
         a CD4 count. Someone who is not infected with HIV normally has between 500 and 1200cells/mm3.
         In a person infected with HIV, the CD4 count often declines over a number of years. HIV drug
         treatment is generally recommended when the CD4 test shows fewer than 350 cells/mm3. World
         Health Organization (WHO) 2010 guidelines recommend starting treatment for all patients with CD4
         counts of less than 350 cells/mm3 in all countries. Although most resource-limited countries aim to
         follow these guidelines, a number still observe the WHO's 2006 guidelines, which recommend starting
         treatment at less than 200 cells/mm3.

        Some countries may have treatment guidelines which differ from WHO recommendations.
        For example, although USA treatment guidelines state that treatment should be initiated in all patients
        with a CD4 count less than 350 cells/mm3 they also recommend treatment for patients with a CD4
        count between 350 and 500 cells/mm3.

        If there are complications, such as if the patient has hepatitis B, an AIDS-defining illness or is pregnant,
        guidelines usually recommend that treatment is started earlier.



        VIRAL LOAD (VL)

        Viral load refers to the amount of HIV in the blood. If the viral load is high, T-helper cells tend to be
        destroyed more quickly. Therefore, the aim of antiretroviral treatment is to keep the viral load as low
        as possible.

        In places where it is available, a viral load test is carried out shortly after antiretroviral treatment is
        started. If the treatment is working effectively, the viral load will drop to the undetectable level – below
        50 copies/ml. Ideally this will happen within 24 weeks of starting treatment, but for some it can take
        3 to 6 months. On the other hand, some people never reach undetectable.

        Viral load tests are then carried out every few months. As some viral load tests can produce slightly  
        different results on the same sample of blood, the results are monitored over a period of time.


        FOR MORE INFORMATION ON THESE, PLEASE CONSULT YOUR DOCTOR.


4. Plan out your Healthy Lifestyle. Proper Diet, Exercise, 8hours of Sleep, etc. and an Optimistic Outlook in life would really help you to improve your immune system. Also having diversion techniques to avoid Stress and Depression will also help improve your immune System as well.

5.  Look for a SUPPORT GROUP. Weather disclosing to a person whom you can trust, it could be a member of the family or a close friend. It is best if you look for a Support Group for PLHIV nearest to your area. HIV Support Groups are brought up to help us and to provide us the over-all support that we need.

List of Support Groups

The Positive Action Foundation Philippines Incorporated, better known as PAFPI, is an organization that is devoted into helping those Person Living With HIV/AIDS (PLWHAs) and their families in coping with their situation involving the HIV/AIDS virus. PAFPI was formed in 1998 by persons living with HIV and AIDS and uninfected persons with a view to empower persons with HIV and AIDS and their families to live a normal, happy and productive life in the mainstream of supported society.

Pinoy Plus Association is the pioneer organization of PLHIV in the Philippines. It is a support group dedicated to the welfare of PLHIV in the country.
Pinoy Plus as an organized community of positive individuals, answering to the needs of peer HIV positive is the pioneer national organization of Filipinos living with HIV and AIDS in the country. Fighting for the rights of positive individuals. PPA are now in the forefront of further enriching the organization, documenting violations, evaluating access to every available services including all kinds of treatment, care and support. Gone beyond Metro Manila, creating chapters all over the country to address the needs and offer support to individuals in need either directly or indirectly affected by the epidemic. They have learned to teach one another on how to live with HIV and how to fight for their rights.

Babae Plus, the first and only existing support group of women living with HIV in the Philippines was established in 2004. Their vision is to create An Independent Lead Organization of Empowered and Supportive Women Living with HIV/AIDS.

Cavite Support Group

Cebuplus Association, Inc. (CPAI) is a non-profit, non business oriented support group run and organized by concerned individuals in Cebu to help, educate and support the people living with HIV/AIDS(PLHA), their affected families (AF) and significant others (SO).

CPAI envision greater and meaningful engagement of people living with HIV, their affected families and significant others towards improving wellness and quality of life in a supportive environment.

CPAI aim to be an independent, sustainable organization that contributes to gender and age responsive, universal access to positive prevention, treatment, care and support through enhanced multi-level, multi-sectored and culturally competent partnership and programs.

CORE VALUES:
S - Service
P - Passion for People
I - Integrity
R - Respect
I - Innovation
T - Teamwork


United Western Visayas Incorporated (UWVI), is a community-based group (CBG) of people living with HIV based in Iloilo and operating in Panay and Guimaras areas with Ilonggo members across the country. The organization is active in both prevention of HIV and promotion of treatment and care among its members who are HIV positive as well as affected families. It strives to address stigma and discrimination in order to
build confidence among the newly diagnosed to access services at the local treatment hub based in the Western Visayas Medical Center.
The growing number of PLHIV in the region is driven by the large number of OFWs particularly seafarers in the region which host the highest number of Maritime Schools in the country and the flourishing – yet hidden sex industry and trafficking enroute the striving nautical highway as entry and exist points for the tourism super region in the Philippines.

The organization has a rich history since its inception in 2005 during the global fund round 5 project. The strong membership and advocacy of the group has helped the Western Visayas Medical Center to have its own CD4 machine, the first outside Manila and a half-way house based in Santa Barbara in Iloilo

Crossbreeds, Inc.

Vida Vivo Zamboanga 

Mindanao Advocates


If you want to know more about the support groups please do contact me for further info. jakepositive@gmail.com www.facebook.com/jakepositive 09278230300 09323298893

jake's source: http://www.avert.org/antiretroviral.htm

Happy 1st Monthsary???

kamusta kayo?  happy ba?

it's my 1st month as an HIV positive person and so far so good naman, i am happy.  grabe andami ko yatang nagawa this past 1 month, sobrang busy... thats why di ako nakakapag update ng blog ko, pasensya na po kasi ayaw ko naman magpuyat kaya i try to get enough sleep as much as i can, kabilin bilinan ni Ate Shola.  ;)

1. SI ED. yes nasabi ko na kay Ed (my bestfriend).  he visited manila (he's from the south) so i took the opportunity to tell him. actually 2 araw na kami magkasama nun, i never got the chance to tell him at first, ayokong malungkot sya so i planned to tell him pag maghihiwalay na kami so when we were at tiendesitas at namamasyal, i decided to pull him aside and we sat sa isang wooden bench doon malapit sa mga pet shop.  hindi ko alam kung paano ko sasabihin and so i pulled out my iPad and have him read the DAY 2 - White Party entry.  yun yung entry where i texted him and i thought about him, my 2nd day.  habang nagbabasa sya, amused pa sya pangiti pangiti --- "hehehe, ako ito ah" tatawa tawa pa sya... tapos nung bandang nasa hulit na sya ng entry, naging quiet na sya, nangingilid ngilid na ang luha sa mga mata nya. so ayun nahawa na rin ako, medyo naluha luha na rin ako.  hindi naman sya sobrang umiyak pero napapansin na kami nung mga tao sa kabilang bench kaya pinigilan namin ang pumalahaw sa iyak.  siguro mga 30minutes kaming andun , di ko na matandaan kung anu pinagusapan namin. so ang ending sa halip na maghiwalay na kami nun at makatulog na sya for his early morning flight, eh di na sya natulog at sumama na lang sya sa aming gumimik at umattend ng isang birthday party.  hes back in the south, calls and text me often, checkin on me. am lucky to have a bestfriend like Ed.

2.  SI TOFFEE.  nasabi ko na rin sa kanya.  he is my longest ex more than 4 years kami.  nasa pilipinas sya for a 6-month vacation.  duktor sya.  ayaw ko rin sabihin sa kanya ng diretso so ang nangyari - 2 weeks after my rapid test, i got a call from Dr. Tuaño na dumating na ang confirmatory test galing San Lazaro, sealed daw ang envelope so i need to come and visit them sa social hygiene clinic nila.  the next morning i texted Toffee, sabi ko may importante lang akong pupuntahan at magpapasama ako sa kanya.  he said yes without asking any more questions.  sa taxi kwentuhan lang kami ng kwentuhan about his life abroad and my life here.  masaya, di ako nagpapahalata na ninenerbiyos ako.  pagdating sa social hygiene clinic dumiretso kami sa 2nd floor and nakita ko si Ate Veron, yung nurse na nagcounsel sa akin.  pinapasok nya ako sa counseling room, sinabi ko sa kanya na kasama ko ang friend ko na duktor at isasama ko sya sa loob.  naupo kami ni Toffee magkaharap sa table ni Ate Veron.  Inabot sa akin ni Ate Veron yung sobre, sinipat ko si Toffee, clueless sya, tahimik lang na nag oobserba.  binuksan ko ang sobre at binuklat ang confirmatory test result.  under sa Western Blot results naka check lahat - gp160, gp120, p66, p55, p51, gp41, p31, p24 at p17 - walang check ang p39 --- halos perfect score --- CONFEEEERMEEEED!    iniabot ko papel kay Toffee.  binasa nya ang mga nakasulat, blanko pa rin ang mukha, walang emosyon.  pinagpatuloy ko ang pakikipag usap kay Ate Veron at kung anu ang next step at paano ang endorsment sa treatment hub.  sa taxi pauwi, maraming tanung si Toffee, sinagot ko naman lahat.  marahil dahil duktor hindi sya mahirap paliwanagan.  ganundin eh sobrang positibo rin ang kanyang pananaw sa mga taong may HIV.  sa kanyang karanasan sa amerika, marami na syang nahandle na HIV patients at alam nya na hindi ito katapusan ng mundo.  sabi nya basta lagaan ko lang ang sarili ko at sa pamamagitan ng healthy living, i will be okay.  syempre importante pa rin daw ang ibayong pagiingat.  pinagusapan rin namin ibang bagay tulad ng sexlife and even party drugs, sobrang open ako sa kanya - sinasabi ko lahat, sometimes i think he knows me better than anybody else in this world.  sana eh siya na lang ang duktor ko forever, sana eh dito na lang sya sa pilipinas. i feel safer when he's around.  

3.  RITM - Research Institute for Tropical Medicine.   ito ang aking treatment hub.  medyo may kalayuan pero kumpara naman sa mga bad stories na naririnig ko about PGH and San Lazaro, i opted to go to RITM instead, mas magastos, mas malayo pero mas maganda ang facility at mas warm ang mga tao.  mababit sila lahat... si Ate Shola... si Ate Letlet, si Dra. Ditangco... i feel safe with them.   mga 2 weeks din ako pabalik balik sa RITM, sankaterbang lab tests for the baseline.  kailangan daw ito para malaman ang health status ko so lahat kailangan i-check.  gumastos ako ng kulang kulang na Php 5,000 to get all the tests done, some are free, some are not.  bawat ospital iba iba ang patakaran.  ang mga first timer daw sa San Lazaro wala pa daw 1k ang babayaran - i actually visited San Lazaro in an attempt to get my baseline tests done without spending too much.  pero my initial visit to San Lazaro just confirmed some horror stories about the place, wala ring available na duktor so i decided to abort the plan.

4.  CD4 Count = 379.   this is my first CD4 count result.  i was hoping it's higher but nevertheless it's a good count na rin.  all my laboratory tests results are also good, am in almost perfect condition except for my HIV. Stage 1 Asymptomatic.  that the BEST news i can get.  maswerte ako nagpatest kaagad ako, ngayon maaagapan ko na ito at magagawan kaagad ng paraan.  sabi ni doktora option ko kung gusto ko ng magsimula ng gamot (ARV's)  sabi ko naman pagisipan ko muna, magreresearch muna ako about it. wala pa naman ako sa standard threshold na 350. so hindi pa urgent ang mag medicate ako...  sa aking isip i will make an informed decision within the next 3 months.  hopefully everything will still be fine by then.

so happy ba ako?  i can say i am very happy, i got one bad news but all the others news that followed are good news.  busy rin ako sa trabaho most especially sa advocacy work ko. in the span of one month i feel like i have become a better person.  feeling ko rin andami kong naaccomplish sa buhay ko... it's a great start... i'm always looking forward to a great day.

HAPEEEEE!!!

ito ang aking diary

BONG


ps... eto pala ang mga tests na kelangan:

AKO SI BONG

13 araw na ang nakalilipas ng malaman ko ang malungkot na balita.  reactive ang resulta HIV screening ko. POSITIVE. 

ako si bong.  nasa 30s. single. isang propesyonal at baguhang businessman. mahilig din ako sa arts.  sabi nila masayahin daw ako at may reputasyon sa pagiging masyadong mabait, parating nakangiti.  ako ang taong hindi mahirap pakisamahan at madaling mag adjust dipende sa mga taong kasama ko.  dahil dito marami akong kaibigan.

mahina ang loob ko sa komprontasyon, hangga’t  maiiwasan ang makipag away ay gagawin ko at ako na lang ang tatalima.  ganun talaga yata ako, sadyang positibo ang pananaw sa buhay.  kung maaring maiwasan ko ang mga negatibong bagay ay gagawin ko.  lagi akong handang umusad at harapin kung anu man ang ipukol sa akin ng tadhana.  sayang ang oras para magmukmok, para umiyak, dapat itong iwasan.

para sa akin ang bawat tao ay unique at may angking kabaitan, at madalas ay kailangan lang nating makita ang kalooban ng bawat isa, walang bias, walang paghuhusga, at tanggapin sila ng buo at isa alang alang na sila ay produkto lamang ng kanilang nakaraan at pinagdaanan.  dahil sa paniniwalang ito, sa mahigit tatlumpong taon ng aking buhay, ay naging maligaya ako, halos wala akong kaaway.  wala akong naging malalaking problema. until now.

masuwerte ako na ipinanganak ako sa above-average na pamilya, napagpaaral kaming magkakapatid ng aming mga magulang at kailanman ay hindi ako pinuwersa ng aking mga magulang na sumuporta o sumustento sa kanilang mga pangangailangan.  naging independent ako at easy-go-lucky. marahil ay sapat na sa akin na maayos ang kininkita sa trabaho at may konting laman ang aking bangko na sapat lamang sa ilang kinakailangan luho sa aking katawan.  paminsan minsang paglabas ng ibang bansa, hobby ko yun, pakiramdam ko na eenergize ako pag bumibiyahe ako, kahit local o intenational trip. pinipilit kong bumiyahe taon taon.

isa akong MSM, PLU, BAKLA, HOMOSEXUAL --- bata pa lang ako alam ko na ito, marahil ramdam na rin ng lahat ang pagiging malambot ko nuong una pa lang.  bagama’t walang harapang tinatanung ang aking kasarian, mula ng magkaroon ako ng maayos na trabaho ay hindi ko na itinatago ang aking sexual preference.  okay na sa mga bagong kaibigan na malaman nilang bakla ako. iniiwasan ko lang na maging out sa aking mga kamaganak at mga lumang kaibigan. marahil ay sadyang naiilang pa rin ako.

sa loob ng 13 araw na iyon, maraming unti unting nagbabago sa aking buhay.  maliban sa masamang balita ng HIV, ay halos magaganda naman lahat ang mga pagbabago sa buhay ko. mga bagay na kusa kong dinesisyunan.  marahil ito ang isa sa pinaka magandang epekto ng HIV sa buhay ko.  ngayon pa lang ay sadyang pinapahalagahan ko ang bawat araw ng aking buhay, bawat minuto.  dahil dito nagsisimula na akong magfocus sa mga bagay na mahalaga sa aking pagkatao. 

kalusugan.    na-renew ko na ang Philhealth ko, malaki daw ang maitutulong nito sa pagdaraanan ko.  nag enroll na rin ako sa gym, tatlong araw na na akong naggygym.  mahigit 4 na taon na yata akong hindi naggigym.  masarap ang pakiramdam.  sana ay unti unting gumanda ang resistensya ko.  nagiging maingat na rin ako sa aking pagkain at pinipilit na lagyan ng limitasyon ang pagpupuyat, di katulad nung dati. 

iwas stress.  lie-low sa trabaho, magbigay ng mas maraming oras sa sarili at magpahinga.  madalas hinahanap ko ang mga barkada ko, basta may mag aya, magkape, mag mall, mag sine – sama kaagad ako. medyo magastos na lifestyle pero sana ay makayanan ko, masaya ako pag kasama ko sila, sa kanila ako humuhugot ng lakas ng loob.  so far so good.

bago pa man ako naging positibo sa HIV, aktibo na ako sa advocacy ng HIV education and prevention.  nagsimula ito mga 3 taon na ang nakakaraan.  nuong una ay hindi ko inaaalintana ang HIV, di ko ito pinapansin, maliban sa napagaralan ko sa kolehiyo, ay wala na akong kaalaman ukol dito. 3 years ago ng may kauna unahang kaso ng HIV/AIDS  sa mga taong personal na kakilala ko. mula nuon namulat ang aking mata sa katotohanang andito na sakit na ito, tunay na nangyayari, at sa aking mga kakilala.  mula nuon, sa mahigit tatlung taon, apat na yata sa aking mga kakilala ang namamatay sa sakit na ito.  may mangilan ngilan na rin akong kilalang positive.  kaya nga mula nuon ay naging aktibo na ako sa advocacy na ito, hanggat may maitutulong ako, ginagawa ko.

kamakailan lamang ay nakatanggap ako ng sertipikasyon para maging  HCCT (HIV Confidential Counseling & Testing) Counselor.  medyo mabigat sa dibdib na mag training para maging counselor dahil mahigit ilang araw pa lang ako na-didiagnose na positive.  pero kinaya ko.  tinapos ko para maipagpatuloy ang advocacy na ito.   during the training may mga nakilala na rin akong mga kapwa positive na mga kaibigan.  tunay ngang marami silang nasa palibot lang natin, hindi lang natin alam. nasa paligid lang sila.  nasa paligid lang KAMI.  kasama ninyo.

ito ang aking diary

BONG

FIRST STEP

dami kong to-do list, kelangang magsipag, price to pay to stay healthy in this oh so positive world.  pumunta ako kaninang umaga sa pinakamalapit na philhealth office, konti lang naman ang pila, siguro mga 30 minuto lang akong naghintay sa upuan.

pinareactivate ko lang ang account ko, mula kasi nag freelance self employed na ako eh hindi na ako nakapag contribute sa philhealth ko. pinag fill up lang ako ng form at pinagbayad ng Php 300.00 sa cashier.

Php 300 peso contribution para sa 1 quarter (3 months). mura lang din pala parang 100 per month lang, not bad at all.  sabi nung girl activated na ulit ako agad at okay na ang coverage ko after 1 quarter.  pero pag may surgery at iba pang malalaking procedure, after 3 quarters pa daw so bali 9 months. 


ibig sabihin pwede na akong magkasakit starting october, at pwede na akong maoperahan starting april next year 2012, hahaha - looking forward to it!

pero seriously, ito ang unang ibinilin sa akin ng mga friends ko, malaki daw ang pakinabang sa philhealth lalong lalo na sa mga hiv positive people.  bukod sa mga coverage sa karamihan halos ng procedures, mukhang philhealth din daw ang magtatake over sa funding ng HIV program ng pilipinas as soon as maubos ang intenational funding come 2012.  so sabi nila importanteng may coverage ka sa philhealth para maging patuloy ang ARV medications mo for free, if ever nag aARV ka na. 

so ayan binigyan na ako ng bagong card, kailangan ko na lang i laminate.


1 step forward to the right direction, next step... mag enrol sa gym --- parang ayoko na sa Fitness First, i was with them mga 4 years ago.  grabe dati pa lang talamak na ang cruising at hadahan noon, kamusta na kaya ngayon? ganun pa rin ba?  il probably enrol sa Golds Gym na lang, me mga contacts naman ako dun, baka makadiscount pa. promise this week i will start na, buti na lang di masyado toxic ang trabaho ko.

so public service na muna, ito mga nakita ko sa Philhealth Office, might be of help to anyone:

maraming salamat, stay safe everyone!

ito ang aking diary

BONG