everything is stable...
but need to watch my sugar and carbs...
otherwise...
i feel good...
i feel great...
kayo?
kamusta kayo?
ako si BONG
ito ang aking diary
everything is stable...
but need to watch my sugar and carbs...
otherwise...
i feel good...
i feel great...
kayo?
kamusta kayo?
ako si BONG
ito ang aking diary
On Mar 17, 2014, at 5:13 PM, Joe wrote:
Hi sir bong,
My name is joe. Bagong enroll po ako sa sagip. Natatakot po ako kasi nitong january ko lng po nalaman na positive din ako. Nung nabasa ko yung blog mo natakot ako sa shingles, kasi may shingles like din ako sa left arm... Diko pa po sure kung shingles ngato kasi di pako nakikita ng doctors. Still waiting padin po ako sa cd4baseline result ko. Pag lmabas nadaw po cd4 ko thats the tym lng na i eeskdyul nila ko sa doctor. Natatakot po ako. Sa blog m po nagkaron ka ng shingles, kumusta napo kayo? Delikado po ba un? Tip naman po on how to deal with it. Wala pa po kasi akong arv e.
Salamat
-joe
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On Mar 18, 2014, at 1:53 AM, Bong Lopez
Shingles ay parang medyo katulad ng chicken pox, kapag nagkachicken pox ka na nasa katawan na natin ito. Sabi ni doc common daw ito sa mga immunocompromised kahit anu pa ang cd4 level. Madalas daw lumalabas ito kapag sobrang stress, naaactivate daw ito na nagiging shingles.
Kung shingles talaga yan dapat masakit at makati at nakikita sa isang side lang ng katawan natin. At dadami ng dadami kung di agad gagamutin.
Dapat pinakita mo kaagad kung sino man ang nurse or duktor sa SAGIP para naagapan.
Medyo mahal ang gamot, almost 8thousand yung nagastos ko. Pero dahil day1 pa lang napacheck ul ki na agad. Di na sya dumami sa akin at di naging masakit. Me maliit na lang na mark sa may tuhod ko ngayon.
Pacheck up mo agad sa duktor.
Bong
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On Mar 18, 2014, at 9:46 AM, Joe wrote:
Nawala din po ba sya? I mean after ng gamutan di na sya bumalik. D naman po masakit at makati yung sakin. Ngayon po nag black na sya. Parang sugat na gumagaling na.
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On Mar 18, 2014, at 12:06 PM, Bong Lopez
Mawawala daw yung mark pero medyo matagal yata. In the future pwede pa rin daw bumalik.
Bong
On Mar 18, 2014, at 1:41 PM, Joe wrote:
Nakita nyo napo ba yung bagong news.... 448 new cases daw po of hiv in january 2014. Average age 28 yo. 85% male. Natatakot po ako. Isa ako sa 448. Ang dami masyado.... Kayo po ba malakas pa? I mean na confine napo ba kayo before. May mga naging infections napo ba kayo? Pasensya napo madamim akong question gusto ko po kasing maging aware sa mga common infections and gustong gusto ko po kasi nakakarinig ng mga success stories pampalakas ng loob ko. Ryt now po kasi di pa alam ng family ko even bf ko. :( Salamat
Joe
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On Mar 19, 2014, at 2:54 PM, Joe wrote:
Hi ser bong...galing po akong sagip just now. Hindi binigay ni nurse anne yung exact number ng cd4 count ko. Sabin kasi nya doctor ko ang magrereveal sakin. Sabe nya below 350 nako. Per di namn daw sobrang baba :( natakot nnman po ako. Nagwoworry po ako. Sabe nya i-sskedyul padaw nya ko. Regarding namn po sa shingles like na nasa arm ko..... Sabe nila di namn daw po to shingles. So negative po ako sa shingles. Insect bite lng daw to na di gumaling. Haist..... Nkakapag worry tlga tong araw nato.
After nun di po ako napakali so nagpatingin po ako sa derma sa metropolitan medical ctr.. Pinakita ko yung shingles-like sa arm ko gaya ng advise nyo. Ayun bingo.... Ang sabe ng derma is herpes zoster daw so niresetahan nya ko ng gamot. Sabe nman po nya pagaling nayung nasa arm ko pero inadvise padin po ako na inumin yung antibiotic.
Thannk you po sa mga responses nyo.. It helps a lot. Salamat din po sa blog nyo kasi nagiging aware ako sa condition ko.. Plus pag may naririnig po akong mga success stories sa gaya natin lumalakas ang loob ko. Tumatapang ako. At nagkakaron ng will to survive. Salamat po.
-Joe
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On 3/19/14, Bong Lopez
Good news yan. Mabuti at nagpatingin ka sa duktor agad. Just drink the
antibiotic in complete dose. Kung talagang below 350 na ang cd4 mo, most
probably eh irerecommend na ng duktor na mag ARV (gamot) ka na sa susunod na
appointment mo. Mabuti na rin yun para maagapan ang gamutan. Goodluck sa
iyo. Balitaan mo ako ha.
wag masyado magworry. Kasi lalo makakasama ang pagwoworry.
Bong
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On Mar 19, 2014, at 4:45 PM, Joe wrote:
ikaw po ba? Kmusta napo pakiramdam nyo? Nakakaramdam din po ba kayo ng
panghihina simula nung nag arv kayo? - salamat
Joe
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On Mar 19, 2014, at 7:13 PM, Bong Lopez
I feel perfectly fine. Wala akong nararamdaman masama sa katawan ko.
Paminsan minsan may fungal and viral infection, which is minor lang naman at common sa mga immunocompromised. Ang kelangan lang masipag magpatingin sa duktor at sundin lagi ang gamot.
Dipende sa ARV na ibibigay sa yo, me kanya kanyang side effects naman, eventually magiging manageable na rin. Ieexplain naman sa iyo ng mabuti yan ng duktor bago ka magsimula.
Makabubuting magresearch ka sa www.thebody.com kasi kumpleto iyan sa lahat ng mga sagot sa mga katanungan ng mga bagong diagnosed.
Yes sagip ako pero semi private clinic ako ni dra kate sa shaw blvd. Di pa ako nakakarating sagip unit ng pgh eh.
San eh eventually magkalakas loob ka ng sabihin kahit sa ilan sa kaibigan, pamilya or BF mo. At wag kakalimutan lagi ang magproteksyon.
Goodluck sa atin.
;)
ito ang aking diary
ako si BONG
kasalukuyang nasa canteen ng RITM alabang, naghihintay ng 1 oras bago lamnan ang pangalawang sputum vial.
dahil sa resulta ng huling CD4 count ko kanina, nag request ang aking duktor ng karagdagang chest xray at sputum test.
mukhang kailangan na talagang magsimula at hindi na pwedeng ipagpaliban, dalawang taon din akong naghintay.
meron pa akong mga 2 linggo para gawin ang mga nararapat na lab tests at mga konsultasyon.
maliban duon eh wala naman ibang dapat ikabahala, wala naman akong nararammdaman.
pero bagong adustment na naman.
but i feel great.
i am ready.
329 = arv
;)
ito ang aking diary,
ako si BONG
(PS: sira ang aking mobile number, you can reach me sa email)
Stats update, i'm back at 498 from a low of 382 two months ago. so am back to "not wanting to get meds" ulit.
it was actually a steady improvement for 1 1/2 years until i got some bacterial infection last february that led to some neuropathic problems (unrelated to my serostatus). i was under medications which is expected to bring my immune system down. fortunately i recovered fast in just a matter of 3 weeks and my doctor said that it's a sign that despite my HIV status my immune system seems strong.
true enough my cd4 went down 382 last february and the doctor recommended that i start ARVs na. i hesitated and decided to wait another 3 months and see if my cd4 count would improve. nevertheless they started me on 6mo of daily doze isoniazid which is a phropylactic medications for TB.
and now the great news --- as of May my cd4 is up at 498 and i should say back on track.
improving without ARV medications.
something that i am very thankful of.
hindi nagpapatalo ang immune system ko, palaban pa rin.
i dont know how long they can hold this fight and i sincerely hope that they would not need medicinal reinforcements soon.
but then again there are a lot of study pointing to early medications as very beneficial to PLHIVs and that it will promise better protection for my sexual partner (bf). kaya mahirap pa rin magdecide i am torn between keeping a status quo and try to live a healthy life free of medications. or starting a new life on medications which can potentially impact my lifestyle.
for now am choosing the easier route of the status quo. i think my immune system deserves a chance to prove itself and fight this virus without reinforcements.
the elusive 500 cd4 count, i hope in another 3 months time i get to that mark or higher. it will surely make my resolve stronger that despite my serostatus, my body is winning the battle, for now.
ito ang aking diary
ako si BONG
Many patients taking HIV drugs can now expect to live into their 70s
Michael Carter
Published: 25 July 2008
A large international study has provided evidence that people taking HIV treatment can now expect to live into their 60s and beyond. The study is published in the July 26th edition of The Lancet, and showed that an individual starting successful HIV treatment aged 20 would be expected to live to be 63, and that a patient initiating an anti-HIV drugs regimen aged 35 could live to the age of 67. It also provided evidence of the dramatic and continued decline in the risk of death amongst people with HIV since effective HIV treatment became available.
What is more, the researchers found that starting treatment with a CD4 cell count above 200 cells/mm3 would mean that a person aged 20 could expect to live to be 70, and that a 35 year-old could survive into their 72nd year.
Nevertheless, they still found that even in their most optimistic estimates, the life-expectancy of HIV-positive individuals was approximately ten years shorter than that of an HIV-negative individual. Furthermore injecting drug users and patients who started HIV treatment with lower CD4 cell counts had lower life-expectancies.
The author of an accompanying editorial calls these findings “exciting” and believes that they underline the importance of prompt diagnosis and treatment of HIV. He also suggests that the risk of death would be diminished and overall prognosis further improved by starting anti-HIV drugs with a CD4 cell count of 500 cells/mm3.
Almost immediately after multi-drug antiretroviral therapy became available in 1996, doctors observed dramatic reductions in rates of illness and death in HIV-positive patients treated with such drugs. A number of studies have shown that antiretroviral therapy has the potential to dramatically improve the prognosis of HIV-positive patients, but they have only considered patients in single cohorts or countries.
Therefore researchers from the Antiretroviral Cohort Collaboration which involves 14 large HIV cohort studies in Canada, Europe and the USA, looked at rates of mortality and the life-expectancy of over 43,000 patients who started HIV treatment for the first time between 1996 – 99, 2000 – 02 and 2002 – 05. They also looked at whether there were any patient characteristics which affected the risk of death or prognosis.
A total of 2056 (5%) patients died. The mortality rate fell from 16 deaths per 1000 person years between 1996- 99 to 10 per 1000 person years between 2002 – 05.
They also noted significant improvements in the prognosis for HIV-positive patients in the ten years of the study. Overall, a 20 year-old starting HIV treatment between 1996 and 2005 would be expected to live another 43 years. Between 1996 and 1999, they calculated that such a patient would live to be 56 years old, but in the period 2002 to 2005 this had improved to a little under 70 years.
There were also impressive improvements in the prognosis of 35 year-olds starting treatment, with an expectation of a further 32 years in life after HIV therapy was initiated. But, once more, prognosis improved over time from an expectation of a further 25 years of life in 1996 – 99, to 32 years by 2002- 05.
Patients who started HIV treatment with a low CD4 cell count (below 100 cells/mm3) had much higher mortality rates than patients initiating antiretroviral therapy with a CD4 cell count above 200 cells/mm3 (aged 20 – 44, 20 per 1000 person years vs. five per 1000 person years).
Furthermore a 20 year-old starting treatment with a CD4 cell count below 100 cells/mm3 would have a life-expectancy of 54 years compared to a life-expectancy of 70 years for a 20 year-old starting treatment with a CD4 cell count above 200 cells/mm3. The importance of CD4 cell count at the time of therapy initiation to prognosis was also seen in 35 year-olds, with patients with a CD4 cell count below 100 cells/mm3 expected to live until they were 62 compared to a prognosis of 72 years for patients with a CD4 cell count above 200 cells/mm3.
The investigators also found that women had a better prognosis than men, but that injecting drug users had a life-expectancy that was up to 20 years shorter than non-injecting drug users.
“There has been an improvement of outcomes with combination antiretroviral therapy between 1996 and 2005, characterised by a marked decrease in mortality rates” write the investigators. They attribute such reductions in mortality and improvements in life-expectancy to “improvements in therapy during the first decade of combination therapy.”
But they note that their study suggests that the prognosis of people taking antiretroviral therapy is still not normal. Picking up on this point, the author of the accompanying editorial highlights the findings of the SMART study which showed that patients with lower CD4 cell counts had a higher risk of serious non-HIV-related illnesses. The SMART study’s conclusions were one of the factors leading to HIV treatment guidelines recommending that antiretroviral therapy should be started at a CD4 cell count of 350 cells/mm3. The author notes the “clinical mischief of untreated HIV infection” and looks forward to the results of a clinical trial which could show if there is any benefit in starting HIV treatment at a CD4 cell count of 500 cells/mm3.
Reference
The Antiretroviral Cohort Collaboration. Life expectancy of individuals on combination therapy in high-income countries: a collaborative analysis of 14 cohort studies. The Lancet 372: 293 – 299, 2008.
Cooper DA. Life and death in the cART era. The Lancet 372: 266 – 267, 2008.