I'm one of those avid readers of your blog site, I find it very informative. I'm Nel, 27 and recently confirmed to have the "gift" last month, (12/2011), I also have a partner for 2 years and he has "it" as well, confirmed (06/2011). We found out last year lang din, when my partner was hospitalised and diagnosed to have a tuberculosis of the lymph nodes (not contagious naman, Thank God). may symptoms na lumabas kasi sa kanya that triggers the doctors to conclude that he has HIV, with our consent, he took the test and yun nga, hindi sila nagkamali. It's hard at first, pero I know my partner and myself really well, bago naging kami we have multiple sexual partners,so hindi na din ako nagulat. That moment was, I considered the lowest point of our relationship so far, we were financially, emotionally and mentally hurt but we managed to pull through with the help of selected friends and family members. We were endorsed by his doctor to RITM to get free meds for his TB and his daily dosage of his ARV. Matatapos na din yung sa TB nya this end of January, and that would be one of the things that I should be thankful for pa din kay God.
It's a blessing in disguise na din siguro na nagkasakit cya somehow for us to know our health status, I'll be taking up some tests na din this month for my ARV regardless kung mababa o mataas ang CD4 ko, I'll take ARV na din. We would like to be involved in programs for positive people like us and would want to meet them and hear their stories. Do you have any ideas kung sino yung pwede namin lapitan? I also wanna hear it from you. so pano hanggang dito n lang siguro, I hope you hindi ka na bore sa pagbasa ng story namin magpartner. Let's keep in touch, thanks!
Continue to inspire us with your blogs.
Nel
Hello Nel,
kainis ka, naiiyak ako sa story nyo --- i like that you guys are taking the diagnosis positively, totoong blessing ang malaman 'kaagad' ang status natin, ng sa ganun ay magawan kaagad ng paraan.
sana ay ipagpatuloy nyo pa ang inyong pagmamahalan, despite of all the challenges. humahanga ako sa inyo.
my next CD4 (6th month) count will be next week so i'l be visiting the beautiful people of RITM again. last July i got 379 (not as high as hoped) --- i suspect my cd4 will be lower ngayon kasi toxic ang work ko this past 6 months and i am highly considering taking ARVs na.
will keep you guys posted.
marami pa ako gusto ikuwento. hanap lang ako ng oras.
salamat,
ito ang aking diary
BONG
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a great article about HIV COUPLES here
Couples
By Raymond A. Smith 1998
A couple is composed of two persons in a committed sexual or romantic relationship, usually over a significant period of time. Couples may be opposite-sex or same-sex, married or unmarried, monogamous or nonmonogamous, and cohabitating or living apart and may or may not have children.
In terms of HIV/AIDS, couples may be either HIV seroconcordant, with both members being either sero-positive or seronegative, or HIV serodiscordant, with the partners having different serostatuses. For most couples, HIV/AIDS raises two paramount concerns: the risk of HIV transmission and the likelihood of illness of one or both partners.
Couples in which both partners believe themselves to be HIV-negative have it as their challenge to remain that way. Statistically, most couples worldwide are seroconcordant-seronegative, especially in populations and regions that do not have a high level of HIV seroprevalence. These couples may be the least likely to practice safer sex consistently with each other, particularly if they have agreed to be sexually monogamous or if they want children. Such couples may feel little incentive to put up with the more unpleasant demands of safer sex and, indeed, may find that issues involved with avoiding the exchange of bodily fluids damages the quality of their sexual and personal lives. Shared HIV-negative status may also encourage a couple to remain together rather than face the risk of infection from partners of unknown status.
If both partners who believe themselves to be in a seroconcordant-seronegative relationship are indeed HIV-negative and remain so over time, then HIV/AIDS poses little direct risk to them. However, some people do not know their actual serostatus but simply presume themselves to be uninfected based on their personal histories or prior HIV test results. A lack of knowledge about HIV transmission and psychological denial may lead some people to underestimate their likelihood of infection.
One member of the couple may become infected by sexual activity outside the relationship or by other routes, such as injecting drug use, blood transfusions, or occupational exposure. A member of a couple who becomes infected during the course of a relationship may unknowingly pass HIV along to his or her partner. Even if one-half of the couple knows him- or herself to be infected, he or she may find it difficult to suggest condom use, because this would be tantamount to admitting to sexual infidelity or unsafe drug use. Even couples with explicit agreements to discuss any risky behavior outside their relationship may find it difficult to do so in practice.
Couples in which both partners are seropositive face a different set of concerns. Such couples occur most frequently in certain risk groups, such as gay men and injecting drug users, or in geographic regions with high HIV seroprevalence. For these couples, transmission may seem to be a less pressing concern. However, such couples run the risk of reinfection, in which one partner infects the other with a different and potentially more virulent strain of HIV, some currently unknown cofactor that might worsen their condition, or a sexually transmitted disease.
Nonetheless, couples in which both partners are HIV-positive may be tempted to ignore safer-sex practices and/or to share needles freely out of a sense that such activity poses little additional risk. Indeed, shared seropositivity may be a source of comfort and solidarity for some couples, although this may be less the case if one partner was the agent of infection for the other.
Pregnancy, either accidental or intentional, is of particular concern for seroconcordant-seropositive heterosexual couples, given the risks of maternal transmission and premature death of the parents. Couples who already have children must take care to make provisions for these children, who may themselves be infected and who run a high risk of being orphaned.
Seroconcordant-seropositive couples face a high degree of uncertainty about the future, because both members must contend with the likelihood of future illness. Yet, the two partners may be at very different stages of disease progression; rather than growing sick and dying together, one partner may still be asymptomatic while the other has already progressed to AIDS. In these cases, the partner who is well may be faced with caregiving, either while healthy or while in declining health. The couple may need to deal with changes in mutual dependence, debilitating opportunistic infections, sexual dysfunction, cognitive impairment, anticipatory grief over the death of the sicker partner, and concern about the future health of the healthier partner.
Meanwhile, psychological and practical support is often less available for well caregivers than for their sick partners. In relationships that are not sanctioned by law, the well partner may also have to contend with difficulties regarding spousal insurance coverage, medical decision making, legal guardianship, inheritance, and unwelcome involvement by parents and other biological relatives.
Serodiscordant couples raise the thorniest set of issues, because they must face major concerns about both transmission and caregiving. Although many HIV-negative individuals might not choose to become involved with someone who is HIV-positive, the seroprevalence rates in some communities are so high that such couplings are almost unavoidable. In other cases, partners may already be committed to one another before their serodiscordant status is discovered or discussed.
Out of concern about transmission, some serodiscordant couples become overly cautious and all but cease sexual relations. Others may become fatalistic about the inevitability of transmission and take unwise risks. Even if the partners find a level of sexual interaction with which they are both comfortable, accidental slipups and condom breaks do occur. Thus, the prospect of infection is always present, causing the infected partner to worry about transmitting the virus, and the uninfected partner may experience "survivor guilt" to the point of wishing to become infected.
Serodiscordant heterosexual couples who wish to have children must be concerned about sexual transmission between partners and about maternal transmission in the womb if the woman is the infected partner. Although a number of technologies have been explored to remove HIV from semen, attempting a pregnancy remains risky for serodiscordant couples.
As a seropositive partner becomes ill, another set of issues arise around caregiving. Although the basic concerns are the same for serodiscordant couples as for seroconcordant-seropositive couples, the divide between the two serodiscordant partners can be greater, as the two do not share the same HIV status. "Survivor guilt" may become even more acute at this stage, impairing the ability of the seronegative partner to protect him- or herself as well as the seropositive partner. Alternatively, some seronegative partners may decide that they are unable or unwilling to help their partner deal with severe illness and abandon the partner to care for him- or herself. In a few cases, the well partner may even be called upon to assist with the suicide of the sick partner.
end.
http://www.thebody.com
by the way nel, you were asking about HIV support group for People Living with HIV (PLHIV) --- for MSM in luzon area there are 2 very active groups right now ---
ReplyDelete1. Pinoy Plus Association, Inc. (PINOYPLUS)
1805 P. Guevarra Street, Sta. Cruz Manila
telefax: (+632) 743-7293
Mr. Jericho Paterno -President
email: pinoy_plus@yahoo.com
2. Positive Action Foundation of the Philippines, Inc. (PAFPI)
2613 Dian Street, Malate, Manila 1004 Philippines
http://www.pafpi.org/
(+632) 528-4531, 404-2911
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as far as i know, membership for PINOYPLUS is 100% PLHIV
PAFPI on the other hand has both PLHIV and seronegative members
they have a female couterpart - BABAEPLUS
in cebu - CEBUPLUS
thanks
BONG