SISTER LOVE

MARCH 19, 2014, Wednesday, 11:20pm

HER: Kuya ***** told me about your condition :(( bakit naman 2 years na pala d ka nagsasabi sa amin, pano pala kung too late na? Kuya naman lagi ka wala sinasabi... Oo madami ka friends to help and support you pero kami naman family mo dapat alam namin nangyayari sayo sobrang lalayo na nga namin at hindi na tayo nagkikita. You have to give us a chance to help you in anyway we can. Sabi naman ng Kuya ***** you're doing everything and getting the best treatment. Doble ingats na dapat at alagaan mabuti sarili mo. You should tell Ate **** too. We are here for you no matter what and if you need anything I am just a msg away too.

ME: Hehe

HER: Anong hehe? Ikaw!!! I had to cry it out last night pa bago ako magising this morning para hindi masyado emo tas "hehe" sagot mo?? Baliw!

ME: http://www.parteeandplay.blogspot.com/2011/07/day-0-june-30-2011.html?m=0 - Yan ang first entry sa blog ko. Thats my story.

HER: I started reading it last night pa. kuya ***** told me about the blog too. Hayss.

ME: Am okay naman. Its not a very big deal really. Ayaw ko lang marami nagwoworry sa akin. Hahaha.

HER: Were suppose to worry and try to help you in anyway. Iuupdate mo kami kung ano nangyayari sa mga treatment mo. Kahit kay kuya **** alam mo naman ako kalahati lang utak minsan hindi ko naiintindihan. Pero alam ko serious yan kaya mag ingat ka.

ME: Thanks. Wag na muna ke ate **** Kayo na lang muna. At pls wag ng sabihin sa iba oks?

HER: Ikaw bahala. I wont say a thing. Let me know if you need anything at isasanla ko kaluluwa ko dyan sa tabitabi. Nasan kaba nasa province parin?

ME: Manila ako now, me tinatapos na trabaho. Punta ako sa province sa sabado.

HER: Yung pakiramdam mo ba ano? May sumasakit ba sayo? O normal lang?

ME: Wala normal lang naman. Alam na ni ***** (husband)? Anung sabi?

HER: Alam nya kase kaharap sya. This morning sabi nya sakin if you need help we'll be here to support and help. Actually ayaw pa sabihin ni Kuya **** we have to sit daw to talk about something another day.

ME: Tapos?

HER: E hindi ako makali i think i ask if its about you tas sabi ko is he sick? Hindi na sya sumagot

ME: Eh pano mo naman naisip na its abt me and that am sick? Do i look sick?

HER: Tas kase sabi ko for some reason everytime nakikita ko post mo sa fb about how you support those with it active ka Dun sa group to prevent it. Paramg naffeel ko lang baka meron ka rin nga matagal ko na naiisip actually. Pero syempre hula hula i dunno gawa lang nung pinopost mo sa fb

ME: Oks.

HER: Kaya yung naconfirm ko sa kanya yung feeling ko yung kinakatakutan ko na na feel ko palang totoo pala.

ME: Ganun na nga. Oks lang yan. Its not like before naman na walang gamot. Now the meds are really good and kelangan lang maging healthy lifestyle and iwas stress.

HER: Yun nga daw importante basta magingat sa lahat. Binabasa ko nga blog mo kagabi super positive kaparin which is great and youre helping others din. Yakang yaka ikaw pa.

ME: Korek

HER: Aylabyu very very much! Ikaw ay ipagdadasal ko galingan mo. Nalulungkot ako na hindi ako makauwi para makita kayo. Hays. Balitaan mo kami palagi kung ano nangyayari sayo.

ME: Okay po. Thanks labyu too.

--- My yougest sister is the best. I miss her :(

BACKSTORY:

So ayun na nga, before leaving, my brother asked my permission to tell our youngest sister and her husband, my being positive. Somehow ayaw nyang nagiisa lang sya na nakakaalam sa family ko at kung anu man daw ang mangyari they are both in a position to help me out. I said yes. They are 2 of my siblings which i am most comfortable with. I love them dearly. Nakakaluwag lang ng damdamin na malaman na kahit anung mangyari they will be there to help me, without judgement.

Am fine as of the moment. In a weeks time is my routine labs, 7mo after starting meds. Crucial kasi i wld know if my stats are getting better so il know if the meds are working for me. Crucial din kasi from the results i would know kung magfufullblast na ba ako sa work at par pursue ng other opportunities sa ibang field of work. I feel great naman. Aside from some minor fungal and bacterial infections na naagapan namang gamutin, I dont feel anything different.

Wish me luck on my lab results.

 

ito ang aking diary

ako si BONG

 

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1st SHOT!

 

Waiting for my 2nd doctor's appointment, i already had my 1st shot of HPV Vaccine a while back. 2 more shots in the next 6months. hepa B and pneumonia vaccines are next!

Mahal magkasakit, mahal din ang mga vaccine para maiwasan magkasakit. thanks to my younger brother for sponsoring some of my upcoming meds and vaccines.

Yes nagdisclose na ako sa younger brother ko who is a nurse. Siya kauna unahang nakakaalam sa family ko. I was desperate, and got no one else to turn to. He was shocked and asked me how i can keep this to myself and not tell them for more than 2 years. I said i dont want anyone to worry about me and since i got my close friends to support me naman, so there wasn't any real threat to my life. He said for me to get the best treatment and not to hesitate to ask for funds. Im touched. Makes my life much easier and i just have to really take care of myself and not worry about looking for funds if needed be.

Today is my 3rd month on ARVs without any issues. After todays routine check-up i will have my 3months supply of ARVs.

Salamat naman, the scary stage is over and am doing really well so far.

Kayo? Kamusta naman kayo?

 

ako si BONG

ito and aking diary

 

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MGA TANUNG NI KOJIE

Hello Bong,

My name is KOJIE from pque 23. At my age, I also have the same blessing. Dont want to mention the magic word. I have so many thoughts in my mind. After knowing that I have obtained the blessing, my plans in life suddenly changed. I need some pieces of advice if its okay:

I planned to work abroad some day when I reach the age of at least 27-28 but knowing I have it I guess its no longer possible, can it be detected from my requirement?

I planned to establish my own family when I reach 30 but having it made me changed to stay single forever and not to put someone at risk and also to pass this on my child.

I decided to stay with my current job, just worried if it can be detected with CBC.

Sorry for the confusion, I am indeterminate and I have researched o  it and its going there after a month so I am just preparing myself. Will have to visit mid of Jan 2012.

Regards,
KOJIE

hello kojie,

maligaya ka sana ngayong pasko at bagong taon, alam ko na matapos ang ganitong 'bad news' eh medyo mas mahirap ng magpakasaya --- pero hindi imposible na sumaya pa tayo, if fact maraming dapat ipagpasalamat sa ating buhay at sangkaterba pa ang dahilan para maging masaya tayo.

working abroad ---  oo maaari ka pang makapagtrabaho abroad, pero hindi lahat ng bansa ay pwede, may mga bansang ipinagbabawal ang magtrabaho ang dayuhan na PLHIV (people living with HIV), makabubuting pag aralan mo muna ang batas ng bansang iyong gustong pagtrabahuhan at kung nagrerequire sila ng HIV testing.  sa US pwede pwede, sa Singapore at ibang Arab Countries hindi na pwede.   pero kung tourist visit lang naman, alam ko na pwede ka pa rin makapunta kahit saan mo gusto dahil wala namang bansa na nagrerequire ng HIV testing sa tourist visa applicants.

establishing a family --- oo maari ka pa ring magkaroon ng pamilya, dahil sa galing ng sensya ngayon ay maari ng magkaroon ng maayos na pamilya ang isang PLHIV.  hindi ito madali ngunit may mga pamamaraan kung paano maiiwasan ang mahawaan ang iyong asawa, gayundin ang inyong magiging anak.  maari kang magtanung sa mga duktor na espesyalista sa HIV/AIDS (sa mga treatment hubs) tungkol dito.

keeping current job ---  nakapaloob sa ating batas (Republic Act 8504) na bawal ang diskriminasyon gayundin ang pagtanggal sa trabaho ng dahil lamang na ang isang tao at PLHIV.  gayundin walang karapatan ang sinuman na pilitin ang isang tao para magpatest ng HIV.  dapat ito ay voluntary.  dahil dito walang kahit sinong kumpanya sa pilipinas ang makakapag-require ng HIV testing sa kanyang mga empleyado, ito ay labag sa batas sa ating karapatang pantao.  ang iyong HIV status ay hindi malalaman sa pamamagitan ng ibang mga blood test tulad ng CBC kaya wala kang dapat na ipangamba.  HIV test lang ang makakapagsabi nito.

indeterminate --- nangyayari ang ganitong resulta kung may mga pag-aalinlangan ang resulta ng ating mga test procedures, maaring hindi pa sapat ang mga antibodies sa iyong katawan (window period), at may iba pang kadahilanan.  mas makabubuting magpatest kang muli sa itinakdang panahon para malaman kung anu ang tunay na resulta.

maganda ang naghahanda.  hiling ko ay maging (negative) ang resulta ng iyong mga darating na tests pero nais ko ring ipaabot sa iyo na kahit positive man ang lumabas, hindi ito katapusan ng mundo.  goodluck sa iyo at sana ay matagpuan mo ang kapayapaan at katatagan ng kalooban ngayong bagong taon.

salamat

BONG

 

TIMELINE (without ARV treatment):